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Give me your opinions!

Fri, 02/20/2015 - 09:35

   This is a more detailed version of my last post. I will write down all of the details I know as the person who commented didn't understand me or answer my question at all. Thanks in advance for reading this and I apologize if it's too long. 

  Back four years ago I was showing horses and riding frequently, until I had a seizure while riding one. I was trying to focus and thought I could get myself together when it first started. My head went fuzzy and I had trouble holding myself up, thankfully the horse was already stopped anyway and was trained well enough not to panic. After my head went fuzzy my hearing went out and before I knew it I was unconscious. When I woke up my trainer and mother were carrying me to a chair, they said my body went completely stiff and my grip on the saddle was so strong even the both of them couldn't pull me off until the seizure started ending. I got an EEG as well as many other tests and everything came back normal. The MRI I had showed that the viens in my brain got tangled into a web when I was developing in the womb. The doctor said it shouldn't cause any trouble and because it was only one seizure and everything was normal, they put me on medicine for seizures for about a week, told me the seizure was going to be a one time thing, and sent me on my way.

   Now, I had a seizure again the night before last. This seizure was different, though it started almost the same way. I slipped down the stairs and hit my tail bone so hard it still hurts as I write this. As my mom was comforting me she noticed that I wasn't using my left arm at all and I was mumbling. Immediately she thought I'm too young for a stroke, I'm 17 years old, and called in her husband to help her hold me up. My head was fuzzy again, and my hearing went from fuzzy to leaving me completely. I tried to pull myself together and just kept repeating "I'm fine" until I lost consciousness. When I woke up my mother's husband was carrying me to the sofa. My mother said this time my body went completely limp. Afterwards I was extremely tired and my head stayed fuzzy for a little bit until it just turned into a headache. The next day I became light headed three times for no apparent reason, one time I was sitting, the other time I was walking etc. and I got a pressure in my head that seemed like a headache but wasn't sound sensitive. I got an appointment with my normal doctor and told him what happened. He gave me an urgent referral to a neurologist, this time they are going to do a sleep deprived EEG. Since my appointment isn't until 3 weeks from now, the earliest they could put me in conflicted with work, I'm curious to hear the opinions of people with epilepsy. Do you think my seizures will become more frequent? I read that once you have 2 seizures there's an 80% chance that you will have more. Do you suppose that I'll get diagnosed with epilepsy or they'll wait and see what happens? Thanks again for any responses and sorry it's so long!

Comments

KittyI was diagnoses with

Submitted by just_joe on Fri, 2015-02-20 - 15:08
KittyI was diagnoses with epilepsy before they ran tests to find out why I was having my seizures.All it takes to diagnosis epilepsy is 2 seizures. Finding the cause of the epilepsy is what is hard to do for many people. All a seixure is "is a electrical impulse hitting wrong in the brain causing a chain reaction" . That area in your brain that grew wrong could be the thing that is causing the electrial impulse going off wrong in your brain. My epilepsy is caused by scared brain tissue. With you the area that area in your brain could be deeepr then the EEG can read. Which is also why the EEG might have come back normal. The neurologist may want you to have a sleep deprives EEG. Or even better at times a ambulatory EEG. He could have you go into a video EEG. They are all longer EEG"s which can give him more information. If yo uhave the MRI then by all means take it with you.It is highly possiable for you to be diagnosed with epilepsy by the neurologist. If he does then he will prescrib medications. Those medications can control your seizures since they help keep the electrical impulses from going off wrong in your brain. When you see him answer his questions and ask him any of your questions. Even with testing there are a lot of people not satisfied.  They have  a lot of uncertainty.They have their openions what what they think bt they are also scared because of the stigma associated with epilepsy.When posting all I go by is what I have been thru and what I have experianced. I knew something was wrong. I had these wierd feeling in my hand from time to time. I knew I had answered the teachers question but the answer didn't come out until he had gone to the next student. Absence seizures or focal seizures are like day dreams all short and the person doesn't lose conciousness.  I hope this helps and yo uget the assistance you needJoe

Give me your opinions!I

Submitted by just_joe on Sat, 2015-02-21 - 18:32
Give me your opinions!I posted to your original post which did not go into details. I have also posted to this below. The tangles web you posted could be what is causing your seizures. I know mainly because scared rain tissue is what is causing mine. All it takes to have a seizure is an electrical impulse hitting wrong in your brain and that growth can cause it just like my scar tissue causes mine.Your post said everything was normal.However you did not post about what the neurologist said nor did you post about the growth of cells in your brain.As I posted below all it takes is 2 seizures to be diagnosed with epilepsy. I had 20-25 EEG's all come back normal and had been diagnosed with epilepsy by our family doctor. It took a few years and many tests before they found the cause of my epilepsy. There are many people that will never find the reason for their epilepsy.

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