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Frustrated--hah, isn't that a common title.

Wed, 10/03/2007 - 15:14
Hello All. For the past year I have been battling my seizures. I have been to: at least six neurologists--three epilepsy specialists, and four pyschologists. At the current time my family and I are stationed overseas, thus it isn't always easy to seek medical care on the economy. Finding the right doctor is a pain in the butt--and the waiting time, could put you in a coffin first. Here is the "problem", I am part of the many whom have "normal" EEGs and MRI scans. I know many of you may say I'm lucky--but after a year, I pray that before I go to an EEG just ONE spike will show up. It would make my life, and the life of my family--so much easier. Anyway.... I have had three diagnosis of "clear--no doubt about it, epilepsy." I have four diagnosis papers, which state that my seizures are physical and not psychological. One that says it is induced by a heavy dose of cortisol. The rest state--"cryptic seizures but most likely epilepsy with tendency of psychological seizures." All pyscs have ruled out the chance that they are psychological. Each one keeps telling me--"Sorry, I can't help you--it's not psychological." (You may be asking why I went to seek four out, after the first one already told me they couldn't help me. Well, the doctors kept sending me back for the possibility it could be psychological.) Here is my main question: I have this one seizure--in which I go into a delirium stage. My mentality is completely warped. Reaction is delayed, yet I remain conscious. Here is the twist, I go into a four year old delirium. I speak, talk, and act as if I were four years old. I have memories from that age. I do not recognize anyone--that I didn't know when I wasn't that age. I do not recognize my surroundings most of the time--for I lived in a different house and country. Yet, I can recall everything from my four year old age and lifetime. Then, when the seizure ends--I lose all memory of the occurrence of the seizure. It can sometime last for hours. (Obviously, I don't know ANY of this--I'm being told this second hand from my mother, father, sister or boyfriend.) Any help or people with a similar seizure would be most helpful. Thanks so much!

Comments

Re: Frustrated--hah, isn't that a common title.

Submitted by gph on Wed, 2007-10-03 - 15:44
At last - someone else who is having age regressions! My mind starts racing - thoughts become fractured and sometimes I then regress to a 5 year old recalling memories, feeling as if I am a little kid and running around! I have seen psychiatrists, neurologist and only the neuro psychologist who has done brain testing on me is adamant that I have TLE. I guess psychiatrists don't like to make the diagnosis - they prefer to label with some other condition so they can treat it as such. I have had the run around for 20 years but I finally believe I have the answer with TLE. My sleep deprived EEG came back abnormal with substandard Temporal Lobe Function. My neuro psych exams showed weakness in Temporal Lobe Function. I am on Lamotragine and it really seems to be helping me. Glad I finally found someone else with these age regression experiences. Gayle

Re: Frustrated--hah, isn't that a common title.

Submitted by LindaG on Sat, 2009-02-14 - 22:27

Hi

please read my daughters story, I thank god she is not alone in all this, she has been like this for 14 days and has just gone back into one of these states. look under Epilepsy or not, opinions appreciated

Hi

please read my daughters story, I thank god she is not alone in all this, she has been like this for 14 days and has just gone back into one of these states. look under Epilepsy or not, opinions appreciated

Re: Frustrated--hah, isn't that a common title.

Submitted by karolina on Wed, 2007-10-03 - 15:45
Hi Sara, Do you know any of the reasons these psych doctors noted as to why they thought this wasn't pseudoseizures since your tests so far have come back normal? Have you done a in-hospital sleep deprived EEG? Have they put you on any type of meds?

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