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First seizure
Tue, 12/09/2014 - 20:12
Hi everyone! My name is Meghan and I'm 24 years old. Six months ago, I had a (what doctors think) tonic-clonic seizure. It happened when I woke up one morning and my mom heard me on the wall. When she came in, I was making a gurgling sound and I was unresponsive. She called 911 and when the paramedics arrived, I was waking up. I don't remember the paramedics being in my bedroom, even though I was answering their questions. I saw a neurologist and he had me do an ambulatory EEG. The results came back normal, but he put me on 200mg of Lamictal as a precaution. So I've been on this medication for 6 months and I haven't had another seizure.
About 2 and half months ago, I started having jerking movements in my legs and arms. Sometimes it's a small twitch and other times it is a full blown jerk. Although it mostly occurs in my arms and legs, my body will sometimes jerk as well. When I went back to my neurologist, he didn't seemed concerned. I'm concerned because it happens every day. I have read that EEG's can come back normal even if you do have some sort of seizure or neurological disorder.
Is there anyone else out there that have had the same type of thing happen? Should I be concerned and see a new neurologist to get a second opinion?
If your neurologist gave yo
Submitted by just_joe on Fri, 2014-12-12 - 09:28
If your neurologist gave yo ua diagnosis and has prescribed medicatins which you posted then he knows you have been having seizures. Have you discussed this issue with him or had any dosages changed?? If not then you do need to talk to him. A medication that works for one person may not work for the next. DOsages are like that too. I am taking the maximum dosage of keppra while others take a small ammount or are at mid range.As for EEG.s comming back normal that happens to many people. The EEG's can only read to a certain depth in the brain which means the abnormalities could be deeper. If the neurologist put you on meds 2 times a day those times should be 12 hours apart. because if they are taken at 7 am and then 10 pm the hours between 7-10 pm the dosages and levels are lower then the doctor wants them. If you haven't told your neurologiwst about this then you do need toAs for a second openion the diagnosis would generally be the same and the new neurologist will contact the old one to garner information he had gotten.UIf yo uhave a good relatinship with your neurologist then these questions may be handled over the phone. If however you haven't talked or seen him since you were diagnosed with epilepsy then you need adjustments made to your dosages.Also understand that any change in your body changes the levels of your medications. Hormonial changes can too. I hope this helps and you get the assistance you need