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DEEP-SEEDED SEIZURES...why bother with the video EEG?

Mon, 07/30/2007 - 14:56
Hubby had a 96hr video EEG done about 2 years ago...he had an episode (partial siezure) where he couldnt tlak, he got confused and was fidgeting then poof came out of it after about two minutes. Doc said nothing recorded on EEG. Here we are two years later....in April Hubby had 48 hr Ambulatory EEG...two seizures showed (Partial Focals). They each recorded 2 minutes. Doc showed us on computer and went over everything adn explained what part of the brain they came from BUT also explained that Hubbys are very deep seeded and these showings were only the tip of the iceberg for him becuase his are so deep in the brain. Hubby had three small seizures last week. Now he is scheduled for another video EEG in Hospital for three days this time at the end of August. If two years ago he had a small siezure (I was sitting with him and he was definately ahving a partial focal) and it didnt bother showing, why is Doc putting him thru this AGAIN sitting him in the Hospital bed for three straight days, no escape, 20 feet of wire to move around with and beign video taped? I know he is going to lower the trileptal some and up the Keppra. But IM unclear as to why he has to go thru all this again especially if it may not show what it should. Doc said in order to get an accurate intensity of his seizures they would have to do brain surgery and place electrodes deep in his brain. We are not ready for that and to me theres not a reason for that unless he was going for brain surgery to fix the seizures. Doc didnt mention he would do that anytime soon and believe us we are happy about that. ANyway, anyone else have really deep seeded seizures that sometimes dont show on an EEG?

Comments

Re: DEEP-SEEDED SEIZURES...why bother with the video EEG?

Submitted by SunflowerPower on Mon, 2007-07-30 - 16:08
I guess you'll have to ask your doctor about that one. Please let me know if you find out, because I'm really curious.

Re: Re: DEEP-SEEDED SEIZURES...why bother with the video EEG?

Submitted by support_caregivers2 on Mon, 2007-07-30 - 18:02
LOL I did...and didnt get much of an answer so I figured someone here has to have something similar going on. My hubby cant be the "ONLY" person out there who has very deep-seeded-in-the-brain seizures. I just feel bad hubby has to go get wired up again. The last 48 hr ambulartory EEG he had a horrible reaction to the glue they used and had huge blisters on his skin underneith the glue. Im hoping this doesnt happen again.

Re: DEEP-SEEDED SEIZURES...why bother with the video EEG?

Submitted by littlebug on Tue, 2007-07-31 - 20:59
My daughters seizures are deep seeded and there for not caught on testing. She has been in the hospital having seizures were they are witnessed by doctors but they cant catch them on test because they are deep in her brain. They believe that someday she might outgrow her seizures but it is hard to know for sure.I hope your husbands test go okay.

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