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changing eeizures and lamictal

Sat, 05/18/2013 - 15:46
Iam on 300 mg lamital daily and i do not know if it is even helping . Do seizures change? I have been waking up several times a night and sleeping poorly for a week now and i feel seizures coming sometimes i am aware to and extent and my head jerks to the right and cant move and other times i black out. I woke ip the other nifht choking on salvia and felt like i had something in my troat . And my whole body hurts but mostly chest,ribs baack and legs, fingers and plam. Arms shake and i Fe weak and out of it. Whenbi feel tjem during the day or outside i sit down and try to avoid people aeeing me. Because i dont want people watxhing me or freaking. i sontsont see Dr for another 3wks and i am seeing another nerou soon Sorry about mu sperling my hands are shaking and Im kibd out of it today. Anyone ezperiancea this ? Or known anything

Comments

Re: changing eeizures and lamictal

Submitted by CSM on Mon, 2013-05-20 - 23:30
Hi, my name is crystal. Speaking from my own experiences only. I have had issues in the past regarding Lamictal. I do believe it can change in the effectiveness of its ability to treat or stabilize aura/seizure activity after a seizure has occurred. For instance, when I first began having seizures I was put on Lamictal 200mg twice a day (400mg total), but after about 3yrs and one very severe grand-mal seizure the Lamictal seem to work diffrently. I would begin having strong overdose side effects about 30mins after taking a dose, and then it seemed like the medication wasn't working effectively throughout the rest of the day or night. I would have intense auras frequently. So I told my doctor about it and requested to add an additional medication (Keppra) while decreasing the dose of my Lamictal to 100mg twice a day. This change was more effective for me than just taking the lamictal alone. As for the body aches and other things you mentioned that I also suffer from (auras/other types of seizures) adding the second medication helped control these things as well. In addition to all of this I asked for a mild antianxiety medication. I try to limit stress both emotional and environmental, I try to get enough sleep, and to eat healthier. For me eating healthier is hard but well worth the positive effects it has on controlling my seizures!  Good luck and I hope this helps in some way.

Re: changing eeizures and lamictal

Submitted by CSM on Mon, 2013-05-20 - 23:19

Hi akunkn its Crystal again! Just wanted to address the part about avoiding people and not wanting them to see you have an episode/seizure. Speaking from my own experience with many very public and severe grand-mal seizures. Yes, I do feel a bit of embarrassment when I think about what people might see or listening to them talk about what they did see, but I don't want someone to find me unconscious or right in the middle of a seizure when I'm convulsing, not breathing, and unresponsive. Even I have to force myself not to hide from people when I feel an aura or a seizure coming, so this is what I do and it may help you to do this as well. I find someone nearby and tell them that I have a seizure disorder, I am not feeling well, and that one may occur. I tell them what to expect and what to do if I do happen to have a seizure. I ask that person if they would wait a while with me in case this happens. In the mean time I call a family member or friend. Let them know where I am and what is going on. I know this seems like it would be imposing on other people to much, but believe me it is a lot worse if someone just finds you laying somewhere or in the middle of having one. Then people really panic and can do some very stupid things trying to help you, but not logically thinking about what they are actually doing. As in one of my experiences where someone made a suggestion to put a cigarette lighter in my mouth to keep me from swallowing my tongue or lifting my leg in the air as if I were going into shock. This of which gave many people at my sister's wedding a full view of what I had on underneath my dress. Talk about embarrassing! Thank the good lord there were other people around who knew what to do. So it is in the end your decisions how you handle your auras and seizures, but I would rather educated one person on what to do than have a whole bunch of panic stricken people trying to figure out what they should do! Hope this helps and good Luck.   

Hi akunkn its Crystal again! Just wanted to address the part about avoiding people and not wanting them to see you have an episode/seizure. Speaking from my own experience with many very public and severe grand-mal seizures. Yes, I do feel a bit of embarrassment when I think about what people might see or listening to them talk about what they did see, but I don't want someone to find me unconscious or right in the middle of a seizure when I'm convulsing, not breathing, and unresponsive. Even I have to force myself not to hide from people when I feel an aura or a seizure coming, so this is what I do and it may help you to do this as well. I find someone nearby and tell them that I have a seizure disorder, I am not feeling well, and that one may occur. I tell them what to expect and what to do if I do happen to have a seizure. I ask that person if they would wait a while with me in case this happens. In the mean time I call a family member or friend. Let them know where I am and what is going on. I know this seems like it would be imposing on other people to much, but believe me it is a lot worse if someone just finds you laying somewhere or in the middle of having one. Then people really panic and can do some very stupid things trying to help you, but not logically thinking about what they are actually doing. As in one of my experiences where someone made a suggestion to put a cigarette lighter in my mouth to keep me from swallowing my tongue or lifting my leg in the air as if I were going into shock. This of which gave many people at my sister's wedding a full view of what I had on underneath my dress. Talk about embarrassing! Thank the good lord there were other people around who knew what to do. So it is in the end your decisions how you handle your auras and seizures, but I would rather educated one person on what to do than have a whole bunch of panic stricken people trying to figure out what they should do! Hope this helps and good Luck.   

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