Topic: Complementary Therapies

Created By: annas mom | 2008-06-25 16:35 | 556 Views | 1 Comment

We have tried craniosacral therapy a couple of times now for my daughter, who has Dravet's syndrome. She was diagnosed with the syndrome just a few weeks ago but has had seizures since she was 11...

Created By: bleedingheart | 2008-06-16 23:54 | 510 Views | 0 Comments

Does anyone know what happens to a person when they take St. John's Wort while on Tegretol or other anticonvulsants? I know there are dangers but I have a hard time telling people what the...

Created By: Marcia M | 2008-06-04 20:30 | 451 Views | 0 Comments

My son is 12 years old with partial complex nocturnal seizures. We have tried every drug out there, had an anatomical hemispherectomy and is still has nightly cluster seizures. Our neuro today...

Created By: Jamie-vette | 2008-05-16 15:04 | 980 Views | 0 Comments

Has anyone tried binaural beats as a way to help control seizure activity?

Created By: 2cor517 | 2008-05-13 09:33 | 736 Views | 0 Comments

Hi all

I have just found this site about a month ago and enjoy reading everyones comments, especially on the Fish Oils and how they are helping.  My daughter is 14, has had E since 4 yrs...

Created By: bmtmcd | 2008-05-08 22:54 | 437 Views | 1 Comment

  My infant daughter has myoclonic epilepsy. We are looking for an epilepsy center on the east coast that offers the ketogenic diet. Especially in the Mid-Atlantic states. If anyone has had a...

Created By: kljagain | 2008-05-08 14:57 | 382 Views | 0 Comments

Haven't seen much posting on acupuncture or other forms of energy work, so I decided to post :-)

I've been taking either tegretol or carbatrol (800mg) since I was 16, and I'm 44 now. I'...

Created By: kathyms | 2008-04-29 00:32 | 834 Views | 2 Comments

I've been hearing a lot about low glycemic index or low glycemic load diet, is there anyone with any experience with this diet treatment for seizures, esp. absence?

Created By: sarah21379 | 2008-04-21 13:07 | 513 Views | 1 Comment

I know that they are doing Stem Cell Therapy in mayn other countries has anyone recived that type of treatment? if so what were the results? and where did you go?

Created By: blessedbeyondmeasure | 2008-04-18 13:29 | 6746 Views | 15 Comments

I have had weird 'dreamlike' states for almost 30 years when I see flashing lights (strobe, etc.).  I have never blacked out, never lost any functioning, have never had any impairment at all.  I...

Created By: ckolonick | 2008-03-30 16:56 | 1988 Views | 10 Comments


 My 16 year old son has epilepsy due to a brain malformation.  He did not have seizures until he was 10 and he started having Complex Partial seizures.  In the last two years, he...

Created By: bleedingheart | 2008-02-02 19:00 | 1605 Views | 6 Comments

Does anyone have any information on Cognitive behavioural therapy? Has it worked for you? What does it involve ? Is there much chance of a person who has been depressed of falling back into...

Created By: bleedingheart | 2007-11-28 18:05 | 3003 Views | 5 Comments

Has anyone tried taking synthetic melatonin to deal with sleep problems? What have been the experiences with this synthetic hormone? Is it a help or a hindrance?

Created By: SunflowerPower | 2007-11-18 19:06 | 1582 Views | 4 Comments

Does anyone know what the cost of neuofeedback sessions tend to be? I'm interested in trying it but I work an entry-level temp job, and I'm very concerened about cost.

Created By: bleedingheart | 2007-11-12 18:27 | 865 Views | 4 Comments


    Has anyone tried using biofeedback to manage the stress that triggers seizures? Or even the seizures themselves? There is this computer program and hardware called Journey to Wild...

Created By: jj84gal | 2007-11-06 16:24 | 768 Views | 4 Comments

I feel like I've been on every anti-convulsite in the world. I have been on literally seven drugs, and I'm sick of it. I'm still having seizurs, headaches, and dizzyspells. My doctor will not...

Created By: quintessence | 2007-11-04 22:56 | 5441 Views | 12 Comments

Has anyone had any experience with or know of people who have been cured of epilepsy by faith healing? Or have you or someone else prayed and not been healed? What was your experience like?

Created By: Andrew314 | 2007-11-01 08:44 | 3403 Views | 8 Comments

My name is Andrew and I am 37yrs old. I have a very rare type of epilepsy known as Pyridoxine Dependent Epilepsy. I had my first seizure at two weeks old. I was in mum’s arms at home and the...

Created By: thecoach | 2007-10-27 11:22 | 505 Views | 1 Comment

I first started having seizures after a car accident in 1997. Initially, it was diagnosed as epilepsy. After 7 neurologists, the diagnosis changed to psychogenic seizures. Conventional...

Created By: Eternal howl | 2007-10-13 19:35 | 849 Views | 0 Comments

Okay, this stuff I was taking until Wednesday was NASTY.

If you're looking at taking Skullcap or 5-HTP to help with your E, monitor your experience with it. I went into clinical depression...