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EEG Neurofeedback or LENS Neurofeedback
Tue, 10/02/2007 - 08:56Comments
Re: EEG Neurofeedback or LENS Neurofeedback
Submitted by matvey on Tue, 2010-04-06 - 01:43
Re: EEG Neurofeedback or LENS Neurofeedback
Submitted by Laurie Lamantia on Tue, 2011-03-22 - 11:55
I just posted but wanted to respond to you. Our son is 16 and has myoclonic absence seizures. He has failed 6 meds. We started Neurofeedback 2 months ago, 2 x per week. Medications have never stopped or even controlled his seizures. Long story but in most cases he ended up in the hospital with each one. We are still in the midst of a slow wean off the latest one. Based on what I researched, Neuofeedback seemed like the best next step. He is a dedicated kid who wants to get better, so he is committed to the treatment. That said, he has been extremely tired after the sessions. Last night he had increased seizures when we got home and said he felt wiped out. So my question is did you ever feel that way? Did you ever have negative side effects of any kind. Get worse before you got better? We want to help him and believe that this could be beneficial, but are concerned.
Thanks for your help.
Laurie
I just posted but wanted to respond to you. Our son is 16 and has myoclonic absence seizures. He has failed 6 meds. We started Neurofeedback 2 months ago, 2 x per week. Medications have never stopped or even controlled his seizures. Long story but in most cases he ended up in the hospital with each one. We are still in the midst of a slow wean off the latest one. Based on what I researched, Neuofeedback seemed like the best next step. He is a dedicated kid who wants to get better, so he is committed to the treatment. That said, he has been extremely tired after the sessions. Last night he had increased seizures when we got home and said he felt wiped out. So my question is did you ever feel that way? Did you ever have negative side effects of any kind. Get worse before you got better? We want to help him and believe that this could be beneficial, but are concerned.
Thanks for your help.
Laurie
Re: EEG Neurofeedback or LENS Neurofeedback
Submitted by lzyolari on Sun, 2009-09-20 - 13:20
I have been doing neurofeedback for almost a yr. I started after I gave birth last year because I was having seizures. The seizures began 2 months before my daughter was born. And persisted after birth. I had a lot of sensitivity to noise, light, and startle, all of which would / could trigger seizures. I had NEVER experienced this before last yr. My life has been turned upsidedown with the seizures and sensations. I did not want to try another med b/c I generally don't have success with the ant-epil meds. Other than making me feel out of sorts. However, neurofeedback and light therapy have been extremely helpful. It took a while to kick in, but once it did I have progressively improved. Although, it can be slow going at times. I am finally driving again. I HIGHLY recommend anyone with epilepsy to try neurofeedback and to be PATIENT with it. I have had epilepsy for 35+ yrs, it takes more time for the neurofeedbk to take effect than someone who had epilepsy for 2 yrs, etc. But make sure you find someone good to work with. A good place to start is Dr. Jonathan Walker in Dalla, Mark Smith, LCSW in NYC. I have been going to mark and he is fantastic.
I would really like to learn about other people who have choosen to try alternative treatmts rather than a new med.
I have been doing neurofeedback for almost a yr. I started after I gave birth last year because I was having seizures. The seizures began 2 months before my daughter was born. And persisted after birth. I had a lot of sensitivity to noise, light, and startle, all of which would / could trigger seizures. I had NEVER experienced this before last yr. My life has been turned upsidedown with the seizures and sensations. I did not want to try another med b/c I generally don't have success with the ant-epil meds. Other than making me feel out of sorts. However, neurofeedback and light therapy have been extremely helpful. It took a while to kick in, but once it did I have progressively improved. Although, it can be slow going at times. I am finally driving again. I HIGHLY recommend anyone with epilepsy to try neurofeedback and to be PATIENT with it. I have had epilepsy for 35+ yrs, it takes more time for the neurofeedbk to take effect than someone who had epilepsy for 2 yrs, etc. But make sure you find someone good to work with. A good place to start is Dr. Jonathan Walker in Dalla, Mark Smith, LCSW in NYC. I have been going to mark and he is fantastic.
I would really like to learn about other people who have choosen to try alternative treatmts rather than a new med.