Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Anyone in the Columbus Ohio Area?

Thu, 07/27/2006 - 11:34
Brief overview...My 3 yo son developed E on March 28, 2006, we failed 4 drugs and diastat was beginning to fail...On June 29, 2006 we traveled to Baltimore MD to see a doc who put T on a Modified Atkins Diet. A typical day for T was to have anywhere from 20 - 80 drop attacks. He was dx with Doose Syndrome (Myoclonic Astatic Epilepsy). 3 weeks exactly into the diet and He is seizure free. Of course we take one day at a time. Right now he has gone 3 days with NONE! It is a blessing. We will be speaking at the Columbus Ohio chapter for the Epilepsy Foundation on August 24, 2006 @ 6 p.m. If anyone is interested please feel free to attend. We will be speaking of our journey and providing info to contact the necessary doc and other enlighting info. BTW, T is the first person in Columbus Ohio to be on this diet for this reason. THIS IS NOT A FUNDRAISER OR AN ATTEMPT TO DO SO. THIS IS A FREE INFORMATIONAL SUPPORT GROUP MEETING HELD BY THE EPILEPSY FOUNDATION.

Comments

Re: Anyone in the Columbus Ohio Area?

Submitted by blaizingsunshine on Mon, 2006-08-07 - 10:58
Hello, my neurologist put me on a modified Atkins diet to see if it could help my seizures about 3 years ago. It helped me gain more control of the non-hormonal seizures and dropped my seizure count from 20+/month to 2-3/month (those were deemed hormonal seizures). I eventually had to come off the diet because of other health issues, but it worked wonderfully for me while I was on it! I live in the Dayton Ohio area and will definately try to make time in my work schedule to attend the meeting - I know quite a few parents who might benefit from the info! Blessings, Mel

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.