Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Any info on Ketogenic Diet
Sun, 01/09/2005 - 16:44Comments
RE: RE: Any info on Ketogenic Diet
Submitted by AmyQ on Fri, 2005-01-07 - 12:57
RE: RE: Any info on Ketogenic Diet
Submitted by feeve69 on Sun, 2005-01-09 - 16:44
We have been on the zonegran for about 4 days and 2 days he hasn't had a seizure. They seem to occur at night between 4-5am he doen't have them all day long some some of the notes i have been reading. I am tired of trying different meds this is the 6th one in 4months. I really don't like the side effects that I have been reading about the zonegran. If anyone has bben on the diet and would e-mail me personally about the ups and downs and ins and outs I would really appreciate it. I am in the process of getting the movie and am currently reading the diet book. my email address is
it would be nice to talk with someone who is going thru the same experiences that we are. We live in a towm of about 5000 people and we are the only ones in town with epilepsy so there isn't a support group or anything. Thank you. Eva
We have been on the zonegran for about 4 days and 2 days he hasn't had a seizure. They seem to occur at night between 4-5am he doen't have them all day long some some of the notes i have been reading. I am tired of trying different meds this is the 6th one in 4months. I really don't like the side effects that I have been reading about the zonegran. If anyone has bben on the diet and would e-mail me personally about the ups and downs and ins and outs I would really appreciate it. I am in the process of getting the movie and am currently reading the diet book. my email address is
it would be nice to talk with someone who is going thru the same experiences that we are. We live in a towm of about 5000 people and we are the only ones in town with epilepsy so there isn't a support group or anything. Thank you. Eva
RE: Any info on Ketogenic Diet
Submitted by TEDB on Fri, 2005-01-07 - 10:48
Hello, we have our 4 year old daughter on it going into the seventh month the seizures have been reduced from about 20 to 3 per month she is still on kepra If she ever goes seizure free for a month or two they will start reducing the medication. There is a movie called First Do NO Harm that gives some information on the diet. Our daughter adjusted to the diet farly well. It takes some time for meal preperations and planing if you want to leave your child some place to go and do something. It's worth trying If it lets you get your child off the rollacoster of medications someday.
Hello, we have our 4 year old daughter on it going into the seventh month the seizures have been reduced from about 20 to 3 per month she is still on kepra If she ever goes seizure free for a month or two they will start reducing the medication. There is a movie called First Do NO Harm that gives some information on the diet. Our daughter adjusted to the diet farly well. It takes some time for meal preperations and planing if you want to leave your child some place to go and do something. It's worth trying If it lets you get your child off the rollacoster of medications someday.