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Any info on Ketogenic Diet
Wed, 02/09/2005 - 18:07Topic: Complementary Therapies
My three year old son has daily myoclonic seizures, as well as some generalized seizures. He is maxed out on Lamictal. He takes B6, and two weeks ago Zonegran was added to his medications. His seizures have gotten a little bit better, but he has lost words, and has regressed. Prior to this, we tried Topomax, and he had a horrible reaction.We want to try the Ketogenic Diet. I just e-mailed Johns Hopkins about it. Have any of you tried it? Any success? Thank you!
Comments
RE: RE: Any info on Ketogenic Diet
Submitted by AmyQ on Fri, 2005-01-07 - 13:01
Hi! Hearing stories like yours makes me want to try the diet. Keppra and Depakote are the next drugs that they will try. His language has regressed on Zonegran (that's what he's on now), and I have a feeling that the other ones will do the same. I think that the diet adjustment will be worth it! Thank you so much!- AmyQ
RE: RE: RE: Any info on Ketogenic Diet
Submitted by kimmac on Fri, 2005-01-07 - 13:44
Let me know if you need any information. I found a very helpful website: www.php.com It has alot of info and support.Lots of Luck.Remember if you need anything from me lrt me know.
RE: Any info on Ketogenic Diet
Submitted by kimmac on Fri, 2005-01-07 - 08:31
Hi,I can honestly say that I know where you are coming from. My 6 year old daughter has had seizures for about 3 years daily. We have tried lamictal, keppra, topomax, depakote just to name a few. In November she was put on the ketogenic diet and I have seen wonders she is slowly trying to speak again and the seizures are not as frequent and her balance is improving. I wished I had done it sooner. It is a very hard diet but we are adjusting to it... Because you will do anything for your children.