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Topic: Advocate for Epilepsy

Created By: composer25 | 2013-09-02 09:50 | 1313 Views | 2 Comments

Hello everyone. Boy it has been quite a while since I've been on here. I
am going to be running a 200 mile relay race starting this Friday. I
was wondering for next year if anybody...

Created By: katfaerie | 2013-07-15 09:56 | 810 Views | 0 Comments

I was thinking about the dangers of being an epileptic now and in the past. They are putting up a memorial in Germany for the "Incurables" people like me, killed during and before WWII. I wrote...

Created By: katfaerie | 2013-07-15 09:56 | 649 Views | 0 Comments

I was thinking about the dangers of being an epileptic now and in the past. They are putting up a memorial in Germany for the "Incurables" people like me, killed during and before WWII. I wrote...

Created By: vivaciousgemini22 | 2013-06-18 21:57 | 711 Views | 1 Comment

There seems to be very little funding and support for Epilepsy. I just want to know is this condition not as important as the medical conditions out there in the world. Wear Purple to spread...

Created By: karenelaine75 | 2013-01-27 21:09 | 717 Views | 0 Comments

Where is the advocacy for epilepsy?  I know it is a forum on here and well....it appears dead.  Where are the people that years ago banded together to help raise awareness?  Oh yeah they were...

Created By: John73 | 2013-01-23 22:58 | 2006 Views | 4 Comments

from dundee to whomever runs the site

ok,you now have had it your way.i ask you remove each and every post under the nickname Dundee due to lack of cooperation when somebody such as...

Created By: endinsight | 2012-04-20 21:46 | 604 Views | 0 Comments

  It's just amazing how the people who are to care for us other than doctors LOL, that say they care what we think and go through, while during the process of helping, these helping people are a...

Created By: princesskyles | 2012-02-11 22:51 | 854 Views | 1 Comment

I was in a relationship with someone that after a while did not handle my epilepsy well. After being out one night and having several complications this person just stopped talking to me, online...

Created By: princesskyles | 2012-02-11 22:51 | 612 Views | 0 Comments

I was in a relationship with someone that after a while did not handle my epilepsy well. After being out one night and having several complications this person just stopped talking to me, online...

Created By: epihelp | 2012-02-02 12:46 | 840 Views | 1 Comment

Hi everyone! I am at thePipelineconference in SanFrancisco. Great speakers talking about what's needed to speed up progress for new treatments. The I'll come into chat tonight for ask epi andfill...

Created By: columbia.epilepsy.study | 2012-01-25 15:59 | 594 Views | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

Created By: princesskyles | 2012-01-17 12:17 | 609 Views | 0 Comments

So I am going to college. I am doing a practicum/ work expereince in a daycare, I am studying Early Childcare. Yesterday I had some apointments with my specialists out of town one of them is a...

Created By: admin1 | 2012-01-04 10:15 | 543 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: dr.pops | 2011-12-02 10:57 | 1367 Views | 4 Comments

I have been an epileptic since the 7th grade, and spent most of my life working in the medical community.  Can any one give me an idea how I can go writing a little book to share my experiences...

Created By: Spike. | 2011-11-26 15:41 | 553 Views | 0 Comments

Due to the lack of communication, I am aware of people not knowing that the names of seizures were changed, and expanded, way back in the year 1981....

Created By: TeamEpilepsy | 2011-11-09 16:00 | 565 Views | 0 Comments

For Epilepsy Awareness Month, I thought I would share information about a...

Created By: drowsydreamer | 2011-10-30 10:10 | 547 Views | 0 Comments

As most of us know, November is Epilepsy Awareness Month! Whoot! I, for one, have several plans to advocate for awareness in my community. Do you?

For starters, every day I'll post a new...

Created By: joeyssong | 2011-10-24 13:08 | 505 Views | 0 Comments

Did you know that more people have Epilepsy than MS, Muscular Dystrophy, Cerebral Palsy and Parkinson's Disease combined and more die because of Epilepsy than Breast Cancer ?

Joey's Song...

Created By: webmaster | 2011-09-13 13:05 | 539 Views | 0 Comments

This has been mentioned before, but it merits repeating that high school student Avra Liverman has set a fantastic example for personal fundraising. She shows how anybody with a little bit of...

Created By: bella0809 | 2011-08-18 23:17 | 1174 Views | 2 Comments

The article on Mothers of Children with epilepsy in Turkey left out a major reason for concern.  Turkey still practices eugenics.  People with epilepsy are not allowed to get married in Turkey. ...

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