Topic: Advocate for Epilepsy

Created By: legal | 2014-10-29 08:14 | 1 Comment

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Lana112 | 2014-10-27 10:45 | 0 Comments

Hi Everyone!

I wanted to let everyone know that I recently created a Meetup group for those with epilepsy or seizure disorders, and their family and friends. If you live in the Fairfield...

Created By: Lana112 | 2014-10-21 11:40 | 0 Comments

Hi Everyone!

 

My name is Lana and I was diagnosed with epilepsy about ten years ago at 21. It is sort of controlled due to medication (I take Trileptal, Topamax, Clonazepam, B6 and...

Created By: rcameron | 2014-08-11 12:10 | 1 Comment

Hi, my name is Cameron. I'm 32 and have been having seizures for a very long while, since I was a kid. Apparently I hit my head early on. I was energetic.

Anyway, I have this weird...

Created By: morthalaanil | 2014-07-30 10:44 | 1 Comment

Hello please help me on my condition . I am jessica 23 year old and married. I got seizures twice in my entire life one at 19 years old and another recently 4 months back,but both were appeared in...

Created By: cb44.hally | 2014-07-23 21:43 | 0 Comments

Hello Everyone,

I am Ceven Bates, I am new to this wedsite. I have had epilepsy since birth and the seizure continued throughout my adult life.Then I got free information on the temporal ...

Created By: kendra42 | 2014-05-12 19:26 | 0 Comments

I was put on lamictal for one month, today is the second month I would be taking it. I was prescribed 25mg for 2 weeks then 50 mg for 2 weeks. 

I wasn't able to pick up my presction and I...

Created By: kendra42 | 2014-05-12 19:08 | 0 Comments
Created By: Spike. | 2013-11-25 12:15 | 7 Comments


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Created By: composer25 | 2013-09-02 09:50 | 2 Comments

Hello everyone. Boy it has been quite a while since I've been on here. I
am going to be running a 200 mile relay race starting this Friday. I
was wondering for next year if anybody...

Created By: katfaerie | 2013-07-15 09:56 | 0 Comments

I was thinking about the dangers of being an epileptic now and in the past. They are putting up a memorial in Germany for the "Incurables" people like me, killed during and before WWII. I wrote...

Created By: katfaerie | 2013-07-15 09:56 | 0 Comments

I was thinking about the dangers of being an epileptic now and in the past. They are putting up a memorial in Germany for the "Incurables" people like me, killed during and before WWII. I wrote...

Created By: vivaciousgemini22 | 2013-06-18 21:57 | 1 Comment

There seems to be very little funding and support for Epilepsy. I just want to know is this condition not as important as the medical conditions out there in the world. Wear Purple to spread...

Created By: karenelaine75 | 2013-01-27 21:09 | 0 Comments

Where is the advocacy for epilepsy?  I know it is a forum on here and well....it appears dead.  Where are the people that years ago banded together to help raise awareness?  Oh yeah they were...

Created By: John73 | 2013-01-23 22:58 | 4 Comments

from dundee to whomever runs the site

ok,you now have had it your way.i ask you remove each and every post under the nickname Dundee due to lack of cooperation when somebody such as...

Created By: endinsight | 2012-04-20 21:46 | 0 Comments

  It's just amazing how the people who are to care for us other than doctors LOL, that say they care what we think and go through, while during the process of helping, these helping people are a...

Created By: princesskyles | 2012-02-11 22:51 | 1 Comment

I was in a relationship with someone that after a while did not handle my epilepsy well. After being out one night and having several complications this person just stopped talking to me, online...

Created By: princesskyles | 2012-02-11 22:51 | 0 Comments

I was in a relationship with someone that after a while did not handle my epilepsy well. After being out one night and having several complications this person just stopped talking to me, online...

Created By: epihelp | 2012-02-02 12:46 | 1 Comment

Hi everyone! I am at thePipelineconference in SanFrancisco. Great speakers talking about what's needed to speed up progress for new treatments. The I'll come into chat tonight for ask epi andfill...

Created By: columbia.epilepsy.study | 2012-01-25 15:59 | 0 Comments

Hey everyone,

I am part of a study at Columbia University which hopes to build upon the collected wisdom of people living with epilepsy to inform research about how people take control of...

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