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Volunteering

Thu, 10/05/2006 - 18:25
First off my name is Joshua Keenan and I'm a freshman at Drexel University. I never understood seizures until I had my first one in front of my entire graduating class in June. Having a Tonic Clonic seizure in front of all of my class mates seemed bad enough, but the seizure itself was just the beginning. The staff members who were present restrained me, and in my post seizure haze, I attempted everything in my power to get away from them. My father is a police officer and managed to arrive at my school about two minutes after the seizure subsided. However the staff was still restraining me and would not release me. However as soon as my father told them to release me I curled up into a fetal position and fell asleep. My second seizure occured in July, one month and three days after my first seizure. By some stroke of luck, one of my classmates knew how to handle a seizure, and really handled the situation perfectly. However, once public safety arrived on the scene they proceeded to move me, even though I protested, and for the most part harass me about the possibility of narcotics in my system. It wasn't until after these events that I realized how many people really had no clue what a seizure truly was, let alone how to deal with one. The point of my post is to ask if anyone knows of any way I can volunteer or help with trying to educate people about Epilepsy so that in the event of a seizure, they have a better understanding of what they are, and how to go about handling them. My seizures have been the biggest negative events in my life, and I've been having difficulty dealing with all that comes with being diagnosed with Epilepsy. I'm very aware that it could always be worse, and this point was really driven home when I was in Childrens Hospital of Philadelphia waiting to see my Neurologist. I feel that if I were to volunteer, I could maybe attach a positive label to my Epilepsy and finally put an end to the flood of negative thoughts that I'm currently dealing with. While I can't change the fact that my seizures weren't handled as smoothly as one would wish for, I would feel much better knowing that maybe someone elses could be. I apologize if I'm rambling but I felt the need to get some things off my chest and to see if anyone has any ideas that would help me out. Thanks for anyone that reads my tangled thoughts and I hope that some one can be of assistance to me.

Comments

Re: Volunteering

Submitted by Bloodyrose on Thu, 2006-10-05 - 18:37
I'm not sure if I have any answers for you, beyond perhaps contacting your local epilepsy group (if you have one in the area) and finding out if you can help them, but I wanted to comment anyway and say how proud you should be of yourself. It's hard coming to terms with having epilepsy, and a lot of us are still doing it, and I think it's incredible that you want to help other people by doing something like this. Good luck with everything.

Re: Volunteering

Submitted by tchaide05 on Thu, 2006-10-05 - 20:17
I just wanted to say that you really dealing with this in a positive matter and I wish there was more people like you out there. My daughter was diagnosed with epilepsy last Feb. and I never realized how much of a misunderstood thing it is. It is people like you who can make a difference to all of us and I wish you all the luck, like the post prior to mine read, contact your local epilepsy foundation and they may by able to help you. Mom to Lauren age 9,

Re: Volunteering

Submitted by angel_lts on Thu, 2006-10-05 - 20:53
Well good for you to look on the positive side. Well it reminds me of me, when I first started volunteering. I contact the epilepsy foundation in my area and started to help there. Started getting involved with them, doing the stroll each year which I am one of the highest collectors for the single group. Possible you will come down and join us when we do the stroll again in June. I then decided on my own to go to my childrens schools to teach about epilepsy and what they can do to help somone. I did it for two years. There is a program I believe it is called HOPE mentor???? You follow the program accordingly each time. I did it on my own and showed a video, talked, handed out papers and did a bit of a skit. The kids loved it. I also do help out at the epilepsy camp each year. I love it. But there is so much you can do. Hope to see you at the next stroll Take care and best of luck with your decision Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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