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VNS
Thu, 04/23/2009 - 13:44
HI I am just letting people know tha I am a VNS Ambassador for Cyberonics for the state of AZ.
if you live in the phx metro area please let me know and what is going on and I will get in touch with the fellow that is the VNS consultand for AZ, adn he can help you.
Nancy
Comments
Re: VNS
Submitted by umichblue on Tue, 2010-08-17 - 19:23
Re: VNS
Submitted by Nerak95 on Tue, 2010-08-17 - 20:05
If the VNS can't be attached to the nerve, there should be no logical reason why he cannot remove it. My daughter had the VNS implanted in 2002. It never really worked for her and because of extreme pain associated with tonic/clonic seizures (I was suspecting that the coil was pulling because of her reaction...she's non-verbal) I wanted it removed. Furthermore, I was concerned about the metal being in her body and if she should get an MRI without the staff knowing that there was metal in her, it could prove fatal. At any rate, I had no problem finding a neurosurgeon to remove it. He told me that the issue is not in removing it but how much damage she could sustain to the vagal nerve. After balancing the pros and cons we had it removed. She did experience some minor paralysis with her left vocal cord but it spontaneously returned to normal in about four months.
Furthermore, if your former surgeon botched the procedure, I certainly would consider going through the protocols to get your money back. Doesn't make sense to pay for something that he messed up.
Karen
If the VNS can't be attached to the nerve, there should be no logical reason why he cannot remove it. My daughter had the VNS implanted in 2002. It never really worked for her and because of extreme pain associated with tonic/clonic seizures (I was suspecting that the coil was pulling because of her reaction...she's non-verbal) I wanted it removed. Furthermore, I was concerned about the metal being in her body and if she should get an MRI without the staff knowing that there was metal in her, it could prove fatal. At any rate, I had no problem finding a neurosurgeon to remove it. He told me that the issue is not in removing it but how much damage she could sustain to the vagal nerve. After balancing the pros and cons we had it removed. She did experience some minor paralysis with her left vocal cord but it spontaneously returned to normal in about four months.
Furthermore, if your former surgeon botched the procedure, I certainly would consider going through the protocols to get your money back. Doesn't make sense to pay for something that he messed up.
Karen
Re: VNS
Submitted by Nerak95 on Fri, 2009-04-24 - 02:41
I've never known Cyberonics to have ambassadors for their devices. That must be a new program they've iniatiated. Maybe after having so many problems with patients trying to work with their representatives, Cyberonics is finally realizing how important it is to work with their patients.
I'd be interested in knowing more about how successful removing the coil will be but especially the leads. The coil used to be buried where you couldn't see it but now has moved to the surface. You can feel each ridge of the coil. The device never did much for seizure control for my daughter.
~Karen
I've never known Cyberonics to have ambassadors for their devices. That must be a new program they've iniatiated. Maybe after having so many problems with patients trying to work with their representatives, Cyberonics is finally realizing how important it is to work with their patients.
I'd be interested in knowing more about how successful removing the coil will be but especially the leads. The coil used to be buried where you couldn't see it but now has moved to the surface. You can feel each ridge of the coil. The device never did much for seizure control for my daughter.
~Karen