Topic: Advocate for Epilepsy

Created By: slyalys | 2016-08-01 14:03 | 0 Comments

I had a status seizure. They broke it. The doctor asked me if I had any bad reaction to keppra and I said yes it makes me psychotic. They ended up giving it to me anyways. I spent the next day...

Created By: sgleason | 2016-06-11 03:05 | 0 Comments

My 5 year old son was recently diagnosed with epilepsy. They said that since he is on the keppra his chances of having another grand mal seizure are low and have given us diazepam as a remedy if...

Created By: Josh.Coil | 2016-06-10 00:15 | 0 Comments

People should sign this if they agree. I think it would do a lot of good for a lot of people.
http://www.thepetitionsite.com/293/558/897/demand-fairer-laws-regarding-epilepsy-and-driving/#...

Created By: Pignulotta | 2016-02-12 09:18 | 0 Comments

Come check out Growing and Living with Epilepsy , a blog about my personal experiences with Epilepsy, as well as info, videos, and a page about you.  Share your story, your experiences, your...

Created By: gingerbeesnazzy | 2016-01-08 16:47 | 0 Comments

Hello community!!

I am finally working my first full time job in over 2 years and am very excited! But, I am having some issues and I am hoping someone can direct me in the right way so I...

Created By: stuckup1 | 2015-11-16 06:20 | 1 Comment

So confused!  I have been supporting November as Epilepsy Awareness Month for several years, but my Facebook posts are being "drowned out" by other people's posting for "Alzheimer's Awareness--...

Created By: GF70 | 2015-11-10 22:46 | 0 Comments

I recently had to stop driving and am trying to get a 'Reasonable Accomadation' to help get to work. Can you all let me know what kind of Reasonable Accomdations that you were able to get from...

Created By: Iker7181 | 2015-11-08 20:40 | 0 Comments

Where do we find legislative action updates on the part of the Epilspsy Foundation? How aggressive is the Foundation in pushing our Federal government into more action on epilpsy?? So much of what...

Created By: nrvene | 2015-10-04 09:35 | 0 Comments

I am new here and looking to network with others. have temporal lobe epilepsy and have "mystical/escatic" partial seizures and I started to paint few months ago.I was so fed up before painting...

Created By: Erica77 | 2015-01-09 00:30 | 0 Comments

Hi everyone, my name is Erica, I’m 26 years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here:...

Created By: Iker7181 | 2015-01-04 17:45 | 0 Comments

I am joining the fight against this heinous disease much later than I should have and I am embarrassed for my hesitation. However I fully intend to be a fighter against epilepsy and relentless in...

Created By: cm.ijpelaar@gmail.com | 2014-12-13 18:46 | 0 Comments

Hi everyone! My name is Chris, I'm a 29 year old Dutch girl and I have epilepsy. I've made a 2 minute movie on epilepsy for an annual 48-hour fundraising event on youtube: Project for awesome! The...

Created By: jcanada888 | 2014-12-08 16:24 | 0 Comments

I would have predicted my life could be this wonderful after right temporal lobectomy in 2013.
...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:21 | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: legal | 2014-10-29 08:14 | 1 Comment

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Lana112 | 2014-10-27 10:45 | 0 Comments

Hi Everyone!

I wanted to let everyone know that I recently created a Meetup group for those with epilepsy or seizure disorders, and their family and friends. If you live in the Fairfield...

Created By: Lana112 | 2014-10-21 11:40 | 0 Comments

Hi Everyone!

 

My name is Lana and I was diagnosed with epilepsy about ten years ago at 21. It is sort of controlled due to medication (I take Trileptal, Topamax, Clonazepam, B6 and...

Created By: rcameron | 2014-08-11 12:10 | 1 Comment

Hi, my name is Cameron. I'm 32 and have been having seizures for a very long while, since I was a kid. Apparently I hit my head early on. I was energetic.

Anyway, I have this weird...

Created By: morthalaanil | 2014-07-30 10:44 | 1 Comment

Hello please help me on my condition . I am jessica 23 year old and married. I got seizures twice in my entire life one at 19 years old and another recently 4 months back,but both were appeared in...

Created By: cb44.hally | 2014-07-23 21:43 | 0 Comments

Hello Everyone,

I am Ceven Bates, I am new to this wedsite. I have had epilepsy since birth and the seizure continued throughout my adult life.Then I got free information on the temporal ...

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