Topic: Advocate for Epilepsy

Created By: allisonj | 2017-05-13 16:35 | 3 Comments

Hello,
I had a brain surgery in 2009, and after having had enough time now to heal from the surgery,I would like to reenter the work force. I have good office skills, but every office job I...

Created By: jblowitski | 2017-05-07 18:23 | 2 Comments

What are people's thoughts on the current draft of the FDA Reauthorization Act of 2017? How do you think it would impact patients, doctors, drug companies?

Created By: epihelp | 2017-03-22 15:29 | 2 Comments

Visit this link to support, donate and/or be a virtual walker for the Brainstormers - http...

Created By: Mixi | 2017-01-20 15:20 | 1 Comment

Hello,

My name Mixi, and I was born with epilepsy.
I'm currently 21 but turns 22 in June this year, I have two jobs; childminder at a kindergarden and administrator as well as...

Created By: Pignulotta | 2017-01-07 23:31 | 2 Comments

Please help spread epilepsy awareness by signing the petition for NFL players to wear purple during the month of November for Epilepsy awareness. The link to sign the petition is
http://www....

Created By: grunak | 2016-12-14 14:33 | 2 Comments

Question???? Anyone that has experience with using medical marijuana for seizures.
I have heard that marijuana can help seizures but also have heard it can make seizures worse.
...

Created By: slyalys | 2016-08-01 14:03 | 2 Comments

I had a status seizure. They broke it. The doctor asked me if I had any bad reaction to keppra and I said yes it makes me psychotic. They ended up giving it to me anyways. I spent the next day...

Created By: sgleason | 2016-06-11 03:05 | 1 Comment

My 5 year old son was recently diagnosed with epilepsy. They said that since he is on the keppra his chances of having another grand mal seizure are low and have given us diazepam as a remedy if...

Created By: Josh.Coil | 2016-06-10 00:15 | 2 Comments

People should sign this if they agree. I think it would do a lot of good for a lot of people.
http://www.thepetitionsite.com/293/558/897/demand-fairer-laws-regarding-epilepsy-and-driving/#...

Created By: Pignulotta | 2016-02-12 09:18 | 2 Comments

Come check out Growing and Living with Epilepsy , a blog about my personal experiences with Epilepsy, as well as info, videos, and a page about you.  Share your story, your experiences, your...

Created By: gingerbeesnazzy | 2016-01-08 16:47 | 5 Comments

Hello community!!

I am finally working my first full time job in over 2 years and am very excited! But, I am having some issues and I am hoping someone can direct me in the right way so I...

Created By: stuckup1 | 2015-11-16 06:20 | 2 Comments

So confused!  I have been supporting November as Epilepsy Awareness Month for several years, but my Facebook posts are being "drowned out" by other people's posting for "Alzheimer's Awareness--...

Created By: GF70 | 2015-11-10 22:46 | 1 Comment

I recently had to stop driving and am trying to get a 'Reasonable Accomadation' to help get to work. Can you all let me know what kind of Reasonable Accomdations that you were able to get from...

Created By: Iker7181 | 2015-11-08 20:40 | 2 Comments

Where do we find legislative action updates on the part of the Epilspsy Foundation? How aggressive is the Foundation in pushing our Federal government into more action on epilpsy?? So much of what...

Created By: nrvene | 2015-10-04 09:35 | 2 Comments

I am new here and looking to network with others. have temporal lobe epilepsy and have "mystical/escatic" partial seizures and I started to paint few months ago.I was so fed up before painting...

Created By: Erica77 | 2015-01-09 00:30 | 2 Comments

Hi everyone, my name is Erica, I’m 26 years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here:...

Created By: Iker7181 | 2015-01-04 17:45 | 2 Comments

I am joining the fight against this heinous disease much later than I should have and I am embarrassed for my hesitation. However I fully intend to be a fighter against epilepsy and relentless in...

Created By: cm.ijpelaar@gmail.com | 2014-12-13 18:46 | 3 Comments

Hi everyone! My name is Chris, I'm a 29 year old Dutch girl and I have epilepsy. I've made a 2 minute movie on epilepsy for an annual 48-hour fundraising event on youtube: Project for awesome! The...

Created By: jcanada888 | 2014-12-08 16:24 | 2 Comments

I would have predicted my life could be this wonderful after right temporal lobectomy in 2013.
...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:21 | 2 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

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