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Awake During Seizures

Thu, 01/05/2006 - 22:20
Has anyone ever remained awake throughout an entire seizure...I started doing this while I was pregnant with my first child. My neuro says that it may be psycological because it started right after he told me how much harm a seizure will do to an unborn baby. One of the things he stressed was that when you pass out, you stop breathing momentarily. Normally this wouldn't hurt the person having the seizure unless it was prolonged but it can do real damage to the baby for even the shortest time. Since then, I have never lost conciousness. I can't decide if that is good or bad cause it intensifies the fear and suffering. Anyone else had this happn??

Comments

Awake During a Tonic-Clonic

Submitted by Kirk08 on Thu, 2008-01-17 - 21:50
I've had it happen once... I had my usual aura (sort of repetitive / forced thinking type daze) so I jumped on my bed and waited... I stayed totally conscious. My body went rigid and I felt "waves" of muscle contractions go through as I stared up at the ceiling. It was quite painful and all I could would think is that I hoped it would stop soon. That was it.

like everyone else congrats!

Submitted by tonialpha on Fri, 2008-01-18 - 08:36

I have had szs since puberty.  I have had 2 children.  My first child I was nervous about having a gen'l sz.  I had one.  The baby was fine, I think the one that had it rough was my husband.  My son is healthy and is 16.  I started having partial seizures like what others are discribing where you are spacing out and I cannot talk worth a darn.  My Epileptologist periodicallywants me in the hospital when I was in his office, I can not talk, or move my right arm but I am not totally out.  It lasts for 20 min. at a time.  My second child is healthy too.  She was surprise and I was on 3 medications and she is 11 and healthy too.  I have had 2 brain surgeries to control seizures and a VNS.  My EEG is my tattle-tail.  My pregnancies and deliveries were my greatest, I had a mid-wife w/ my last child and I did not have one seizure.   I wish you luck!  When I was last pregnant I was the healthiest, now, when you get into post-menopause I can tell you another good story!  Good luck on your pregnancy! I had my daughter naturally w/o medication.  I was in the shower in the hospital w/ a midwife that did the trick for me along w/ the message!

I have had szs since puberty.  I have had 2 children.  My first child I was nervous about having a gen'l sz.  I had one.  The baby was fine, I think the one that had it rough was my husband.  My son is healthy and is 16.  I started having partial seizures like what others are discribing where you are spacing out and I cannot talk worth a darn.  My Epileptologist periodicallywants me in the hospital when I was in his office, I can not talk, or move my right arm but I am not totally out.  It lasts for 20 min. at a time.  My second child is healthy too.  She was surprise and I was on 3 medications and she is 11 and healthy too.  I have had 2 brain surgeries to control seizures and a VNS.  My EEG is my tattle-tail.  My pregnancies and deliveries were my greatest, I had a mid-wife w/ my last child and I did not have one seizure.   I wish you luck!  When I was last pregnant I was the healthiest, now, when you get into post-menopause I can tell you another good story!  Good luck on your pregnancy! I had my daughter naturally w/o medication.  I was in the shower in the hospital w/ a midwife that did the trick for me along w/ the message!

same as kirk -

Submitted by kimberly843 on Fri, 2008-01-18 - 12:50

I opened this forum because I just posted a similar one a few days ago.  I've realized that everyone's brain is different and no two cases of epilepsy are alike - like a fingerprint or a snowflake, it is impossible.  I has been very interesting, sad, heartbreaking and yet sometimes promising to read through blogs and forums of the miles between the same spark in one neuron.   

 A few days ago, I jumped out of bed in my usual fight to stop a TC.  Sometimes I win, but not this time.  I fell, lost touch with the ground and felt the usual pulsing waves rip through.  For what seemed like 5 minutes, but was probably less than 45 seconds I remember my thought process.  I've never heard someone else describe MY seizure before, as their own.  Lately, in my fight to not get sucked into the seizure - I've stayed conscious longer and longer and everything besides my thoughts are gone.        

I opened this forum because I just posted a similar one a few days ago.  I've realized that everyone's brain is different and no two cases of epilepsy are alike - like a fingerprint or a snowflake, it is impossible.  I has been very interesting, sad, heartbreaking and yet sometimes promising to read through blogs and forums of the miles between the same spark in one neuron.   

 A few days ago, I jumped out of bed in my usual fight to stop a TC.  Sometimes I win, but not this time.  I fell, lost touch with the ground and felt the usual pulsing waves rip through.  For what seemed like 5 minutes, but was probably less than 45 seconds I remember my thought process.  I've never heard someone else describe MY seizure before, as their own.  Lately, in my fight to not get sucked into the seizure - I've stayed conscious longer and longer and everything besides my thoughts are gone.        

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