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clueless when im going have a seizure

Sat, 01/05/2008 - 12:43
I was talking to this lady online whos turns out to be a nurse and I was telling here that i have epilepsy and  I cant tell when im going have a seizure and she told me im the first person she ever knew that cant tell when he or she going have a seizure so I was wondering is it normal for a person not to know when he or she going have a seizure

Comments

An aura can occur with any

Submitted by suebear on Sat, 2008-01-12 - 23:35

An aura can occur with any seizure it doesn't matter what type. There is a big issue with the seizures, some get the warning and some don't. It's that simple.That can change over time as the body chemistry does but does it always change, not necessarily. I've been having seizures for close to 40 years and I've gone through some changes with them let me tell you. I at one point had GMs and didn't get any warning with them, that was when I was a kid. When I got older things changed and now I'm actually able to know when they're going to show up so I can do something about it. I actually have a VNS to help me out and slow things down just a little. 

 Something to make note of, the auras may be different each time they occur in other words, what occurs this time may not be the same as the next. I have had that happen on frequent occassions.

Another issue with auras is the fact that not all seizures will follow an aura. I'm having an issue now where I could have an aura that just lingers. I've been experiencing that for a few weeks now in between the other so that has been a new issue.

 

An aura can occur with any seizure it doesn't matter what type. There is a big issue with the seizures, some get the warning and some don't. It's that simple.That can change over time as the body chemistry does but does it always change, not necessarily. I've been having seizures for close to 40 years and I've gone through some changes with them let me tell you. I at one point had GMs and didn't get any warning with them, that was when I was a kid. When I got older things changed and now I'm actually able to know when they're going to show up so I can do something about it. I actually have a VNS to help me out and slow things down just a little. 

 Something to make note of, the auras may be different each time they occur in other words, what occurs this time may not be the same as the next. I have had that happen on frequent occassions.

Another issue with auras is the fact that not all seizures will follow an aura. I'm having an issue now where I could have an aura that just lingers. I've been experiencing that for a few weeks now in between the other so that has been a new issue.

 

don't feel "abnormal" about

Submitted by shannonlee on Fri, 2008-01-11 - 17:37

don't feel "abnormal" about not knowing, that's what my advice to you is. I've been having grand mal seizures since i was 14 and never knew they were coming. I just had not one, but two in the same night just two days ago....a new experience for me. I thought back on it and I felt a weird sensation before the first one, and that might've been an aura (tbh, i don't know what an aura would feel like) but it was the first time I've ever recognized something like that in myself. I certainly didn't feel the second one that night....so it may have been a one time thing.

I think not everyone knows, and that's just sort of how it is. Just how not everyone knows what specifically triggers their seizures.

_____________________

Shannon Lee Beckstead

don't feel "abnormal" about not knowing, that's what my advice to you is. I've been having grand mal seizures since i was 14 and never knew they were coming. I just had not one, but two in the same night just two days ago....a new experience for me. I thought back on it and I felt a weird sensation before the first one, and that might've been an aura (tbh, i don't know what an aura would feel like) but it was the first time I've ever recognized something like that in myself. I certainly didn't feel the second one that night....so it may have been a one time thing.

I think not everyone knows, and that's just sort of how it is. Just how not everyone knows what specifically triggers their seizures.

_____________________

Shannon Lee Beckstead

Mother Nature's Warnings

Submitted by George R on Sun, 2008-01-13 - 22:49

Maybe that sounds corny, but I've had epilepsy in many forms for over 35 years. As a result, have become quite familiar with how my mind and body are going to take notice when my neurological system becomes a bit more electricity-filled than usual. Headaches increase. Trouble sleeping occurs. Sometimes dizziness while walking. Even a less than perfect temper. And while newer anti-seizure medications such as Keppra have done a world of good for me, I have accepted the fact that my imperfect neurological system will still pretty much decide when I'm going to be out of things for a moment or two. And yes, I am grateful that I do have the warnings, and that my seizures are of a nature far easier than years ago!

Maybe that sounds corny, but I've had epilepsy in many forms for over 35 years. As a result, have become quite familiar with how my mind and body are going to take notice when my neurological system becomes a bit more electricity-filled than usual. Headaches increase. Trouble sleeping occurs. Sometimes dizziness while walking. Even a less than perfect temper. And while newer anti-seizure medications such as Keppra have done a world of good for me, I have accepted the fact that my imperfect neurological system will still pretty much decide when I'm going to be out of things for a moment or two. And yes, I am grateful that I do have the warnings, and that my seizures are of a nature far easier than years ago!

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