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clueless when im going have a seizure

Sat, 01/05/2008 - 12:43
I was talking to this lady online whos turns out to be a nurse and I was telling here that i have epilepsy and  I cant tell when im going have a seizure and she told me im the first person she ever knew that cant tell when he or she going have a seizure so I was wondering is it normal for a person not to know when he or she going have a seizure

Comments

I have never know when I

Submitted by happygirl on Sat, 2008-01-12 - 03:50

I have never know when I have had a seizure or come out of a seizure.  Unless someone says to me that you have a seizure I am totally clueless.  I find this very frustrating because I am totally reliant on other people to monitor my seizure activity for me.

Recently I have been having seizures at work where I will simply stop doing what Iam doing for periods of time or worse yet start asking my colleagues totally irrelevant questions regarding work.  Needless to say, this is causing major problems for me and my work life.  I am totally clueless going in and out of these seizures and my employers are becoming increasingly frustrated with this as they are aware of them occuring and not tolerarant.

My problem is how do you get it under control if you are unaware of your seizure activity. 

 

I have never know when I have had a seizure or come out of a seizure.  Unless someone says to me that you have a seizure I am totally clueless.  I find this very frustrating because I am totally reliant on other people to monitor my seizure activity for me.

Recently I have been having seizures at work where I will simply stop doing what Iam doing for periods of time or worse yet start asking my colleagues totally irrelevant questions regarding work.  Needless to say, this is causing major problems for me and my work life.  I am totally clueless going in and out of these seizures and my employers are becoming increasingly frustrated with this as they are aware of them occuring and not tolerarant.

My problem is how do you get it under control if you are unaware of your seizure activity. 

 

You can start by talking to

Submitted by suebear on Sat, 2008-01-12 - 23:55

You can start by talking to your doctor and if you don't have one, get to one quickly. Discuss your concerns with him or her. This is an issue that needs to be addressed because your health and your employment are in jeopardy.The only way to get it under control is seeing someone who will be able to work with you and determine how it can be taken care of.

If you're not on medicine and having seizures something is obviously wrong and you need to go to visit a doctor. If you're on medication and still having seizures there are other optioins depending upon your medical history. If your doctor will not answer questions, see someone who will. Don't take one doctor's word on a suggestion if you don't feel comfortable, ask someone else to have that assurement. 

Will keep you in my thoughts and hope you get your issue taken care of soon 


 

You can start by talking to your doctor and if you don't have one, get to one quickly. Discuss your concerns with him or her. This is an issue that needs to be addressed because your health and your employment are in jeopardy.The only way to get it under control is seeing someone who will be able to work with you and determine how it can be taken care of.

If you're not on medicine and having seizures something is obviously wrong and you need to go to visit a doctor. If you're on medication and still having seizures there are other optioins depending upon your medical history. If your doctor will not answer questions, see someone who will. Don't take one doctor's word on a suggestion if you don't feel comfortable, ask someone else to have that assurement. 

Will keep you in my thoughts and hope you get your issue taken care of soon 


 

Unable to control while not being aware of most seizures.

Submitted by tbaldwin on Sun, 2008-01-13 - 03:27
I've never had an aura, I've had uncontollable seizures since they began when I was 17y.o. in '73. Ever since I've always been prescribed/ trying different medications. All that time I've been taking two or three at one time. Sometimes when a new medicine is brought in, one that I'm currently taking is slowly removed. In '96 most of my L. Temporal lobe  was removed, this surgery hasn't been very therapeutic. Before then, I was aware of a seizure per month, now it's a seizure every 3 weeks to a month. I'm probably having many of which I'm not aware of. Sometimes I'd be at a bus stop and have a seizure, afterwalds I'd stand up only to have a policeman there who'd said, "You had seizure,_ _ _ ", then I'd be asked questions such as, "What's today's date?, Can you tell me the name of the president?", and I've been asked others. After having a seizure, my memory isn't very good, and because of Verbal-memory Loss, I wouldn't be able to answer something correctly. If it happened to be a paramedic, who'd arrived in an ambulance while I was unconscious they'd say, "You just had a seizure, get into the ambulance." I don't need to go to a hospital, If I did I'd get bills from,  the fire department for ambulance service, the hospital, the physican. I don't need any of this. If I knew that I was going to have a seizure I'd stay at home. And I probably would'nt know that I had it.    

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