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clueless when im going have a seizure

Sat, 01/05/2008 - 12:43
I was talking to this lady online whos turns out to be a nurse and I was telling here that i have epilepsy and  I cant tell when im going have a seizure and she told me im the first person she ever knew that cant tell when he or she going have a seizure so I was wondering is it normal for a person not to know when he or she going have a seizure

Comments

I found I was unable to tell

Submitted by EarthMonkey on Sat, 2008-01-05 - 17:05
I found I was unable to tell I was about to have a seizure the majority of time I had seizures. Usually the only way I knew was someone told me it had happened or I was in a completely different place than I remembered.  There are a lot of people who have no idea they had one unless they are told by someone else, they were doing something and then they were doing something else without memory of the change, and/or they are injured. There also are a lot of people who have auras which inform them that a seizure is beginning to happen. The nurse just didn't know what she was talking about.

Unable to tell

Submitted by aussie2006 on Tue, 2008-01-08 - 05:37

Hi : Until I had a left temporal lobe lobectomy, I was in the same category and never knew when a siezure was going to happen. I had some beauties, in the middle of 6 lane highway crossing the road, fell down flight of 14 stairs , on a set of escalators and got my clothing jammed in the moving stairs etc. I became able to recognize when I had a seizure , after the event, I may have dropped some papers or whatever I was carrying, I may be on the ground myself or someone may have moved me to a chair. There are a lot of people who dont get the warnings, so dont be concerned .  Have you considered looking into the possibilities of surgery?  

Hi : Until I had a left temporal lobe lobectomy, I was in the same category and never knew when a siezure was going to happen. I had some beauties, in the middle of 6 lane highway crossing the road, fell down flight of 14 stairs , on a set of escalators and got my clothing jammed in the moving stairs etc. I became able to recognize when I had a seizure , after the event, I may have dropped some papers or whatever I was carrying, I may be on the ground myself or someone may have moved me to a chair. There are a lot of people who dont get the warnings, so dont be concerned .  Have you considered looking into the possibilities of surgery?  

I never knew when I would

Submitted by revawave on Tue, 2008-01-08 - 15:20

I never knew when I would be going into a grand mal seizure.  Looking back on them I could say yeah, I was really tired that day, my eyes were glossy, but there are plenty of times when I am tired and my eyes get glossy.  My dad is the same way, has no clue when one is coming on.  He just had one about a week ago while driving, tore the entire tread off of 4 brand new tires after slamming into a stop sign and putting pedal to the medal.  He hadn't had one in well over a year. 

I can always tell when I am coming OUT of an absence seizure, but never when I am going into one.  As soon as I come out I know what happened and I can continue a conversation, whatever I was doing without anyone knowing what just happened.

 As for me, I have thought about if I cannot get myself under control with going back on Depakote (I am the only adult living that my neuro knows that still has absence seizures in his practice, the other one died - the last neuro I went to didn't even know ANY adults that still had them in adulthood), I just may see if surgery can be an option.  Even though they are so fast, people are so unaware of them, they keep me from so much out of life.

I never knew when I would be going into a grand mal seizure.  Looking back on them I could say yeah, I was really tired that day, my eyes were glossy, but there are plenty of times when I am tired and my eyes get glossy.  My dad is the same way, has no clue when one is coming on.  He just had one about a week ago while driving, tore the entire tread off of 4 brand new tires after slamming into a stop sign and putting pedal to the medal.  He hadn't had one in well over a year. 

I can always tell when I am coming OUT of an absence seizure, but never when I am going into one.  As soon as I come out I know what happened and I can continue a conversation, whatever I was doing without anyone knowing what just happened.

 As for me, I have thought about if I cannot get myself under control with going back on Depakote (I am the only adult living that my neuro knows that still has absence seizures in his practice, the other one died - the last neuro I went to didn't even know ANY adults that still had them in adulthood), I just may see if surgery can be an option.  Even though they are so fast, people are so unaware of them, they keep me from so much out of life.

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