Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

24 hr eeg what is this like?

Wed, 11/28/2007 - 16:03
what is this 24 hr eeg thing where you walk around with it attached to your head? can someone explain what it was like to wear one. how would it work since the other eeg they always told me to stay still and not move my hands or things like that. how can this get an accurate reading. what if you touch something and it sends an electric shock. would that mess up the test? sometimes that happens to me when I touch a doornob and I get a shock on my hand.

Comments

The doctor wanted me to be a

Submitted by xgi on Sat, 2007-12-01 - 13:02
The doctor wanted me to be a normal as possible. I drank coffee but didn't get any nicotine but did use my MJ and had no problems. The machine still detected sezuire activity anyway. I never heard of anyone in the hospital for that kind of test?? Maybe I'm wrong. Just go with it and try to be as " normal" as possible if that is possible with a bunch of wires sticking out of your head LOL. On the way home I did go to freak out a couple small girls.they satred at the wires in my head. I told them this is what happens when you don't eat your veggies. Good luck.......x

Re: The doctor wanted me to be a

Submitted by Lisa Parham on Tue, 2008-04-08 - 16:47
hi,i am a 37 year old women,i had one a couple years ago,i didnt like it but my friend made me feel good about it.It is just like the EEG's you have when you go to sleep,only you are awake and doing everyday things.I didnt have a seizure when i had it on so mine didnt work well for me.I think i am going to have another one done in a couple of days cause i noticed i am having a lot more seizures now that i am older.Hopefully this time i will have one while i am wearing it.I suggest you take a hat or a shirt with a hood to the dr when you have it on you.It's not as bad as you think it is.Good luck with it.

I thought it was really

Submitted by catsamu on Fri, 2007-11-30 - 16:18
I thought it was really uncomfortable, and the pack that you carry over your shoulder was so heavy after awhile. Plus in these troubled times, I was more than a little bit aware of what I may have looked like to the average person on the street while I was walking around with a head full of wires, a scarf covering it all and a box at my waist with all the wires running into it! You can bet I didn't go out in public until it was time to get all those wires taken off... I don't know how they can get a good, accurate reading. They didn't have me stop my medication for the 24hour test, which I kind of thought they'd have to do. The neurologist said he saw some abnormal activity, but it was inconclusive. I asked him to show me on the printout exactly what was abnormal and I sure couldn't see the difference between abnormal and any of the other markings. I guess with the 1st sleep deprived EEG (which showed abnormal epileptiform spikes in the left temporal lobe) and then the 24hour EEG, they were able to better adjust the Keppra dose. Deb

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.