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has anyone noticed developmental delays with there child on phenobarbital???

Wed, 09/05/2007 - 21:58
My daughter will be 2 at the end of the month and she has been on phenobarb since she was nine days old. She started a drug called topamax about 2 months ago and she started doing so good that the docs started to decrease her phenobarb. The first full day of the decrease you could see a difference. She was smiling and laughing. She started to try to roll over on her own. Two weeks later they decrease the phenobarb again and told us that phenobarb is proven to cause delays in children. She now grabs for toys which she never did before. I was just wondering if anyone else had the same problem. And i wanted to give a heads up to the parents that have there children on the drug. katie

Comments

Re: Re: has anyone noticed developmental delays with there child

Submitted by Baby Sam on Fri, 2007-11-09 - 09:31
We tried phenobarb for a short time and our son had a horrible reaction, he was stiff as a board and his seizures began to cluster. We switched to Topamax and we noticed a difference within a week or so. His seizures were actually controlled for a month. In that time, his tone improved, he began to play with toys and he smiled. It did not happen overnight but over the next few months, his development took off. We had to stop the Topamax b/c it stopped working but it was great for a short time. The one thing to really watch is weight loss or lack of gaining weight. Our son did not gain weight for the duration that he was on the med. I hope that you find success with the medication. Best wishes,

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