Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Does ANYONE like being on Keppra?

Thu, 09/14/2006 - 16:02
Topic: Medication Issues
Okay, so I know no one really likes being on any medication, but I am just wondering, does anyone LIKE Keppra? I hate Keppra. I hate the way it makes me feel. I'm always tired and grouchy and fidgety. I can't see straight most of the time and my already short-fuse is way way shorter. Has anyone been on Keppra and NOT had bad side effects? Because for the number of people, it seems like most people I've talked to DON'T like it.

Comments

Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Does ANYONE like bei

Submitted by bex on Thu, 2007-10-18 - 14:39
I gave the Keppra ago but am now coming off it. It wasn't a road I wanted to go down but had to give it a try no? It has caused a lot of hairloss otherwise maybe I would have perserved with all the other side affects for a bit longer. Was definitely suppressing my appetite, affecting my mood, not my happy go lucky self, lots of people commented. Anything could irritate me or send me over the edge. Am also on Topomax. I got up to 1000mg over a 3 week period, and am now on 5 day decreases of 250 mg. Its quite a dark road getting off it too, making me very emotional.

Re: Re: Re: Re: Re: Re: Re: Re: Re: Re: Does ANYONE like being o

Submitted by Inalek02 on Fri, 2007-11-02 - 14:54
My 5 year old daughter is on Keppra since the beginning of this year and it seems that since she's been on it her seizures have definitely increased. At first I thought that it was working, but I was totally wrong. She whines a lot more than she usually does and she seems to be a lot more irritable. Every time she has a seizure the doctors increase the Keppra a littlbe bit more each time and it isn't working at all. Thank God that she has an upcoming appointment with her neurologist so we can see if there are any other medications that are available for her to try. She also is on Carbatrol and that seems to be working fine for her. But I feel your pain about Keppra, I don't think it works at all and the only thing about it is my daughter loves to take it, I think it's because it tastes like grape, because that's exactly what it smells like. Sorry you are feeling this way and I hope you find some relief soon...Good Luck KK's Mom

Re: Does ANYONE like being o

Submitted by kruizerchick on Sat, 2008-11-08 - 18:13

So here's another positive one for Keppra.  I haven't been dealing with seizure medication very long... I was on Trileptal at first which I HATED.  It made me drunk, weird and stupid.  It also made me sick to my stomach and I eventually wound having an allergic reaction to it.

I'm currently taking 1500 mg of Keppra and feel so much better.  I still get my words jumbled up together occasionally and my appetite isn't what it used to be, but at least I feel normal compared to what I experienced on the Trileptal.  (Not to mention 2 sizes smaller!  Once I realized what was happening with my appetite, I started paying more attention and now make sure I eat regularly so all's good there.)

I like the Keppra, but I've only experienced two drugs so take that as you will.

So here's another positive one for Keppra.  I haven't been dealing with seizure medication very long... I was on Trileptal at first which I HATED.  It made me drunk, weird and stupid.  It also made me sick to my stomach and I eventually wound having an allergic reaction to it.

I'm currently taking 1500 mg of Keppra and feel so much better.  I still get my words jumbled up together occasionally and my appetite isn't what it used to be, but at least I feel normal compared to what I experienced on the Trileptal.  (Not to mention 2 sizes smaller!  Once I realized what was happening with my appetite, I started paying more attention and now make sure I eat regularly so all's good there.)

I like the Keppra, but I've only experienced two drugs so take that as you will.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.

Subscribe