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Grow out of seizures???
Sun, 05/21/2006 - 21:52Topic: Parents & Caregivers
Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We are running one more metabolic test, but that's just to be safe (we thought he had MSUD). Has anyone else heard this? Has anyone else had an experience where someone "grew out of it?" Just looking for the positive!
Comments
Re: Grow out of seizures???
Submitted by LauraCunningham on Wed, 2007-10-10 - 08:46
My daughter was diagnosed with epilepsy 5 years ago, she was 1 year old at the time. We have continuously been told by the Neuro that she can/will grow out of it. her seizures are idiopathic, I have e in my family but it is my grandmother (her great grandmother) so we were told it is too far removed to be a genetic link. I continue to hope that she will outgrow the seizures. Right now she has been seizure fee for a year and they want to wean her off her dugs. This is the part I hate the most cause while you are weaning you are in constant stress - alert mode waiting, waiting, waiting. Wondering when it will be. When will the seizure start? It makes me feel very horrible. I can't see an ambulance with out getting a cold chill in my body. I hate them. I hate hospitals too my daughter has spent too much of her little life bing in them.....anyways, have hope, it might happen. They might outgrow it.
Hello, My daughter is in
Submitted by spoker55 on Thu, 2007-11-08 - 19:06
Hello,
My daughter is in the same exact boat, she is turning 4, seizure free for over a year, her grandmother had it, Im dying to take her off of the Kepra, I would love to talk and exchange numbers.
Re: Re: Re: Grow out of seizures???
Submitted by wargrass on Mon, 2007-10-01 - 11:37
I started having seizures at 8 years old. I stopped having seizures at 14 years old. I have not had a seizure since. I do have a low threshold. I had a car wreck several years ago and went on Topomax for a while. I was on Topomax 75 days. I came off because I had a severe pesonality reaction to that drug. My daughter is 6 and recently began having seizures. It looks like it will be Panayiotopoulos Syndrome. I feel confident that she will outgrow them as well. Based on my experience, everyone is different, and you should monitor and log all seizure and neuro activity forever. I always consider whether I am getting enough sleep as well as other known triggers. Stress is one of my biggest. Your chief goal should always be to raise a child who can grow up to be well adjusted with or without seizures, because once you are prone to seizures and have a low threshhold, you will always be prone and have a low threshhold whether you outgrow the seizures or not. Kelly