Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Complex Partial/Night Terrors

Thu, 02/19/2004 - 15:47
I am new to this forum so please forgive any mistakes I may make. I am looking for different information on How Epilepsy is actually diagnosed. I was told by the Epilepsy foundation that recurring seizures is termed Epilepsy. I had been in a car accident 12 years ago. 9 months after that my problems began. At first it only happened while I was sleeping. I would scream, jump out of bed and run until I hit a door or a wall. The only way I could tell that something had occured was by the injuries, my bitten tounge (lip) or my family telling me. I have tried to jump off of the balcony, taken off my clothes, gone outside or walked around afterward talking nonsense. At times my memory is affected. I have seen many doctors. They said I suffer from Night Terrors. About 8 years ago they started to happen while I was awake. Many times I had gone grocery shopping and woke up in an ambulance. It got to where I could feel it coming. I would run and bite something. One doctor witnessed this and said "it looked like a complex partial seizure." After 10 years I was finally put on dilantin. # years ago. Now one of my main concerns is that I have NEVER been diagnosed. The last doctor I saw said that I have a mental problem. This is based on Normal EEGs. I had only seen this doctor twice. Has anyone else had similar problems in getting help??If someone else can relate to my story or give me feedback I would appreciate it. Thank you.

Comments

Well Nanny, I'm not a

Submitted by SunflowerPower on Tue, 2007-10-09 - 22:23
Well Nanny, I'm not a doctor so this is just my humble opinion. First of all, that does sound like a night terror. As for the thing that happened during the day, I think that because it only happened once, and he was dehydrated, you shouldn't worry about epilepsy too much. If it happens repeatedly or if you are just plain worried and want to be reassured then see pediatric epilepsy doctor. Don't let doctors make you feel bad for being concerned. ER docts and PCPs usually don't know much about epilepsy. Trust your instincts. Here is info on Night Terrors Luck, ~Sun~

Re: Well Nanny, I'm not a

Submitted by ROCKNROLL on Wed, 2007-10-10 - 02:08
SUNFLOWER, I HAVE A QUESTION. I READ ABOUT THE NIGHT TERRORS YOU SO KINDLY PROVIDED. IF IT WAS MORE THAN ONE PAGE, I DIDN'T GO ANY FURTHER. TOO HARD VISUALLY. WHAT I WANT TO KNOW IF THIS MIGHT BE SOMETHING THAT I AM HEADING FOR. I TRIED TO READ AS MUCH OF THIS AS I COULD, AND SEEMS LIKE IT MAINLY HAPPENS WITH KIDS. MY VISIONIS NOT GOOD, SO I HAVE TO SKIM AND PICK UP WORDS HERE AND THERE. CAN'T READ ALL THESE THINGS. I GET SICK A LOT. I HAVE NOTICED A PATTERN. FIRST, I GET EXTREMELY HOT. NOT MENOPAUSE. BEEN THERE, DONE THAT. THEN THE CP/S START. THEN I AM TOO WEAK TO GET OUT OF BED. HOWEVER, THE PAST TWO TIMES I GOT 'SICK', I NOTICED I WAS GETTING VERY AFRAID, WHICH MADE NO SENSE TO ME. I WAS SO SCARED OF ?????? I DON'T KNOW, AND REALLY COULDN'T FIGURE OUT WHY I WAS FEELING LIKE THAT BECAUSE I AM NOT AFRAID. THERE SEEMED TO BE A LOT OF FEAR CONCERNING WHERE I AM LIVING/ NOT SOMETHING I FEAR EITHER. AFTER THE S. STOPPED, THE FEAR WENT AWAY AND BAM, CAME BACK THE NEXT TIME I WAS GETTING SICK AND HAVING THE C/PS. IS THIS LIKE ANYTHING THAT IS BEING DISCUSSED HERE, OR DO YOU OR ANYONE HAVE A CLUE WHY THAT IS HAPPENING OUT OF NOWHERE?? THANKS, JAN

To RockNRoll

Submitted by transamboss on Thu, 2012-01-05 - 23:44

I have a post mainly toward your post, I posted recently and it sounds very familiar to what your saying and it sounds like we have alot of similiar problems. http://my.epilepsy.com/discussion/997298 please take a look at my detailed blog and let me know in a comment.

I have a post mainly toward your post, I posted recently and it sounds very familiar to what your saying and it sounds like we have alot of similiar problems. http://my.epilepsy.com/discussion/997298 please take a look at my detailed blog and let me know in a comment.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.