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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Hi all
I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is...
I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again.
My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke.
Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc.
Thank you so much in advance!!
alana
Comments
Re: Re: Re: Nocturnal seizure... what is it?!
Submitted by tjlmom on Tue, 2007-09-04 - 10:29
What you are going through sounds exactly like what is happening to me. I started having seizures when I was 13 (right before my period). I was put on medicine and was seizure free until about two years ago when I had one driving. Thankfully no one was hurt. However this summer has been horrible. I am on four different times of medicines (some only when I have my period) However now I am having seizures when I am ovulating. My last seizure was the weekend of August 17/18 when I had 7 within 24 hours. I don't remember anything. My EEG was clear. I see my neurologist tomorrow (9/5) but I am at the end of my rope. I hope you are still seizure free, but I would love to know what meds you are on.
tjlmom
Re: Re: Re: Re: Nocturnal seizure... what is it?!
Submitted by lynn610 on Tue, 2007-09-11 - 18:16
What's the first thing that emergency personnel do when they take you to the hospital? That's right they put an intervenious in you and HYDRATE you. Then you feel better when you are in the hospital because they are constantly pumping liquids into you. Then they can't find anything wrong with you, but they medicate you anyway just so you feel like they did something. Do you know that most people are dehydrated all the time? I have been having Nocturnal Seizures since I started perimenopause and they really got bad with full blown menopause. So one of the common threads here is hormones. This epilepsy site says that there was a study done in 1999 that says that 20% of women going into menopause start having seizures. It also says that seizures along with your periods are called catimenial seizures. So if they know there is a connection why have I been unable to find a neuro who knows about the hormone link. I even bought the book "Women's Moods" and gave it to my neuro to read. It is about the connection between your brain, hormones and stress. I am feeling much better since I am drinking a lot of water and exercising and I am now "through" menopause. I am hoping to get off the seizure meds soon. I probably should have been on Hormone Replacement Therapy for the past 7 years instead, because the Topamax did NOT stop the seizures. Good luck to all of us.
Re: Re: Nocturnal seizure... what is it?!
Submitted by kaiser2599 on Tue, 2007-08-21 - 16:55
I'm 26 and just over 4 years ago I had a seizure while I was sleeping at night. My girlfriend was with me at the time and called the ambulance, and all I remember from that night was going to bed and then being in the hospital the next morning with no clue as to what was going on. I did know I was extremely sore and my tongue was cut up though. I went through all the tests and the Doctor was unable to find anything wrong. One month later I had another seizure, sleeping at night, and once again I found myself in the hospital the next morning in the same state I was afer my first one. I went through all the tests again, and everything came back normal. He put me on medication and I've been seizure free since. I visit a neurologist twice a year and this year I will seeing a new neurologist for the third time.