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flying with epilepsy

Wed, 08/08/2007 - 19:28
Has anyone had troubles when flying? I'm going to be flying to Los Angeles soon and this is the first time since I've had E. I'm wondering if anyone has noticed problems happening like due to the altitude or oxygen change in the cabin. I'm hoping not to fall asleep on the plane which could bring on a seize. That wouldn't be good. Where do you get those bracelets anyway. Maybe I'll carry one in my bag just in case. Do people really wear those now? Maybe I'll just get a big red E tatoo on my wrist instead.

Comments

Hello,I'm a concerned

Submitted by jomita1969 on Mon, 2018-07-02 - 16:40
Hello,I'm a concerned grandmother! I have a grand daughter Isabella Rose Mancheno who'll  be two years old July 8th! She suffers from TSC which causes her seizures! She had a malignant brain tumor which need to be removed at a month old! She continues to have seizures! She takes 4 different meds a day! My mother Della Segotta told me she feels its no good for my grand daughter to be flying up and down the plane! The doctor told me no its no good for my grand daughter to be flying up and down a plane! The father Antonio Emilio Mancheno should know this being a flight attendant! I feel as grandmother as well as the great grandmother think its unsafe for Isabella Rose Mancheno to consistently be flying up and down the plane in her condition having TSC! 

Re: flying with epilepsy

Submitted by elizleigh on Sun, 2007-08-12 - 13:27
I actually just got back from a trip. Not sure if it has anything to do or not because I still haven't had a chance to talk to my doctor yet, but I took a red eye on my way out and I saw light trails the entire flight - and I never see them normally at night at a normal altitude. I was sick for two days after, had a small seizure the 2nd day. I got back last night and didn't feel very good for a short time but right now I'm feeling fine. I would ask your doctor before you fly. I'm going to let him know what happened when I go in on Tuesday. Hope my post isn't too late for you.

Re: flying with epilepsy

Submitted by mally hoo on Tue, 2007-08-14 - 02:08
Get this, I'm a travel agent. Travel is my life, my love, the thing that makes me me. AND I'M NOT SURE I CAN EVER FLY SEIZURE FREE AGAIN!! I'm so very angry. Last three flights, little short two and three hour flights, I seizured on them all. The motion, the altitude, the smell of turkey jerky now being sold on flights(we got to get together and put a stop to that). Be careful. Yes, get a bracelet which is available at any pharmacy. Order it in enough time to get it in before your trip. If you have an aura, tell the flight attendent you feel you may seizure. Believe me, I know you don't want to bring attention to yourself but reality is reality. We have to live our lives and must do what we can for our own safety. Good luck, I'll be thinking positive thoughts for you. And live, don't let this stop you!!!

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