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Nocturnal seizure... what is it?!
Tue, 07/24/2007 - 22:24Hi all
I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is...
I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again.
My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke.
Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc.
Thank you so much in advance!!
alana
Comments
Re: Nocturnal seizure... what is it?!
Submitted by tinkier on Fri, 2007-08-10 - 22:24
Hi, sounds almost exactly like the seizures I have. My doctors do not seem to want to find out the why or anything, they just want to medicate me so that I can not function properly. My MRI and CT scans came back normal when I first started in 97, I was on meds for 2 years then was weened off. I was med and seizure free for 7 years and just started having them again. You are lucky that it does not take you too long to recover. It can take me up to a week sometimes before I feel normal and when I bite my tongue it takes forever for it to heal.
My doctors say that night time seizures happen to some people and can eventually lead to day time seizures. Great news, right? Wish I knew more, but it is a relief to see that I am not the only one who has these types of seizures. I am in the process of finding a doctor who wants to help me and not just medicate me, if i find something out I will let you know. One thing, if they put you on medication don't stop taking it. I refused to accept this the first time and did not take my medicine all the time which led to me almost loosing part of my tongue. Until they say you don't have to anymore it is always good to be safe because you never know when one is coming.
Re: Nocturnal seizure... what is it?!
Submitted by SamanthaC on Sat, 2007-08-11 - 01:45
First let me start by saying, I am very sorry to hear this happened to you! It does sound like a seizure to me I would ask a doctor about an EEG maybe a family doc can help you about by referring you to a neuro. If you feel like something is wrong don't let anyone get in your way of finding out what it is. Be persistent, I hope you find out what is going on. Good Luck
~*Samantha*~
Re: Nocturnal seizure... what is it?!
Submitted by msbeeson on Wed, 2007-07-25 - 09:19
Hi, Stress and lack of sleep can both onset a seizure, but for someone that has never had a seizure I know it makes no sense. I had my first seizure fifteen years ago..as an adult, and none of the doctors could explain it. However, if you wet the bed during the episode that is a sign of a large (grand mal) seizure. When I arrived at the hospital I wasnt fully aware of what was going on either, it took about two hours to get back to my old self. The ER dr. asked me who the president was and I said "Jimmy Carter"...haha, this was in 93! I have been through test after test and they have found no physical evidence of Epilepsy, yet diagnosed me with "Adult Epilepsy" in which they can not explain the reason why I have them. It is very frustrating either way. Good luck to you