The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Sex Drive

Mon, 09/13/2004 - 19:47
Does anyone else have limited sexual interest due to their seizure disorder? I have just read that temporal lobe epilepsy can cause affect the sex drive. I personally have no interest in intercourse. I now wonder if this could be why. I'd love feedback.

Comments

Re: Re: Re: Sex Drive

Submitted by kkrn1988 on Mon, 2007-09-03 - 22:28
my gyn and neuro haven't been very helpful in that area either. I'm frustrated and so is my husband. This has been going on for several years. I don't know if it has anything to do with E meds or not. Many of my friends who don't have E have the same problem. I've explored alternative medicine, but I'm a little scared about taking supplements because they might cause me problems. But I'm not giving up. My interest in sex occurs mid cycle so at least my husband gets something. I feel really bad, but what can I do?

Re: Re: Sex Drive

Submitted by Believe on Tue, 2007-07-03 - 12:28
Great topic. It has been several years now that I've had a low drive. Luckily, my husband and I have been together for 20+ years and we can remember the good old days. He has never given me a difficult time about my loss of interest and is very understanding. We are a very affectionate couple otherwise; our daughter even teases us about it saying that none of her friends' parents act like us. It is just my drive is just pretty much non-existent. It wasn't until I read this thread that I realized epilepsy can affect a person this way. Personally, I could never understand my disinterest. I love my husband dearly, want to be with him, just can't get myself into it. I was just recently diagnosed with E so this is something I will have to ask my doctor about. Originally we had thought I had gone into perimenopause early as women in my family tend to go into menopause at an early age, but the blood test came back negative. Now the good news....the medicine seems to be helping me! YAY! Both my husband and I are happy at that prospect.

Hi Believe, my husband and I

Submitted by itsmyeviltwin on Tue, 2007-07-03 - 15:48
Hi Believe, my husband and I are in a simiar situation and have been together 30 years. I was diagnosed with E in March. I have zero interest, he is on meds that limit his as well but we remain very affectionate. We are a bit older than you so it isn't such a big deal. I am also in perimenopause so lots of period issues with my seizure meds...I also had my first tonic clonic my first period in 8 months, so my seizures are hormonal related. I may have had a seizure I was pregnant...just never realized it was a seizure, wrote it off to being pregnant, fainting, etc. So E may have been around awhile with me and just inactive waiting for the right triggers to really blow up on me into tonic clonics. I have TLE and have always had really strange visions, hallucinations, etc much of my life that have been written off to anxiety, etc. I have a lot of anger about that now.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.