Conscious during seizures

Hi Kirsty T When I have a full blown seizure (grand mal) I am fully aware during the seizure that I am having one. Weird as that may sound, but it is true. And when I was a child, when all this started at the age of 10 for me,doctors didn't know what to think. During my seizure, I always felt like I was in another world, like outer body experience or something. I could not see anything or feel anything physically,but my mind was still in tact. I was aware of having my seizure and not knowing how long I had been seizing. There is no concept of time anymore. And I dont know if I'm going to be okay or not. I can only assume I will be like every other time I have had a seizure. What I was doing before the seizure, memory fades and I am all confused. But I am well aware that I am having a seizure. I am always scared throughout a seizure, not knowing what will come of me, am I ok or not? When seizure stops, I'm confused and mobility is very little if anything. More like paralised for a while. I will cry or sleep afterwards and be sore all over. Might find injuries from the fall I had. Wasn't until I had an MRI scan to show my scar in my left temporal lobe, in the language area en all! I didn't start having seizures til I was 10 years old. But seeing as it was in the language area and I never had problems with speech, my neuro has told me that I have had epilepsy since birth practically and have used language in another part of my brain instead. Interesting huh? So there you have it! I dont fall unconscious when having a seizure. I am aware of it. Just cant control it when it happens. Luckily now though my meds do control most of the time. I mainly have just auras these days. But even those can be upsetting from time to time. But that's life! So dont worry, You're not alone :-) Quirky

Life4me During my seizures, I am usually aware that one is starting because of my aura. Other people's voices seem like in a distance, and whatever I am doing feels like Deja Vu. I have had seizures for 12 years, and can function during because of my habits. When I come out of a seizure, I am usually shocked that I was able to function during the seizures, but I do not remember doing those things afterwards. Live alone w/ a 7 years old and really shocked hours later after a seizure when my brain totally clears up and start rewinding.

If your episode was captured on an EEG and there were no signal changes in your brain waves then it was probably a pseudo-seizure. These can seem just like epileptic seizures but do not cause an electrical disturbance in your brainwaves. They can cause just as many problems though as real ones so you should talk with a psych to work through any problems you are having. A pseudo-seizure is like when your brain is acting out because it can't deal with whatever stress it's under.