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adult onset epilepsy
Sun, 05/20/2007 - 23:19Looking to see if there are any other women out there with adult onset epilepsy with the complication of migraines and breakthrough complex partial seizures. My tonic clonic seizures have been controlled for one year now with keppra but my complex partials are breaking through the topiramate. They have not found a cause.
Comments
Hi ib34, I wasn't diagnosed
Submitted by Sausha on Wed, 2007-05-23 - 12:52
Hi ib34,
I wasn't diagnosed with epilepsy till I was 34, TLE, and I have suffered with migraines for most my life. I had thought my szs were under controll, CP & SP, with trileptal but I've been having break throughs as well. I too am looking for answers here, but I wanted to say hello and that your not alone. I have read that aeds can loose their affect after time so people either switch medications or add to it. That's a possibility for us both.
I surely don't have all the answers, but I understand what your going through, as do many here :o) There is alot of informative people here that are very helpful. I'm sure you will get some good feedback that will help you.
Sincerely,
Sausha
Re: Hi ib34, I wasn't diagnosed
Submitted by lb34 on Wed, 2007-05-23 - 18:32
LB
Dear Sausha,
Thank you so much for your reply. I just got placed on a third med. and as usual I'm adjusting to the s/e's. It is good to here from another adult onset epileptic with migraines. I don't know what TLE stands for. I haven't had CP only Tonic Clonic and the SP. I know God has a purpose in all of this but these adjustments to knew meds are sure getting tiresome on me and my husband. I sure do appreciate your response.
Sincerely,
Lynn
Re: adult onset epilepsy
Submitted by belc0011 on Fri, 2008-10-10 - 18:25
Like everyone else, so glad to find this posting! I had adult onset TLE too - first grand mal was about six months ago (I was 24 at the time, I'm 25 now). I had horrible migraines in the month leading up to the seizure - so bad i was sure i had a brain tumor or something. THen I had the seizure, and they found abnormal activity in the temporal lobe and started me on Keppra. I attributed the Keppra to getting rid of the headaches, but now the headaches have returned. I'm frustrated with my neuro who does NOT specialize in epilepsy, and I am currently trying to switch. I have been having the headaches in greater frequency along with auditory hallucinations, which he told me was psychosis from the meds! (From what I have heard on this site, it sounds a lot more like simple partials to me!). Anyway, would love to hear more from anyone about the connection between migraines and seizures. Since I've only had the one seizure, I have no idea if I'll ever have another, if I should stop driving, etc. Anyone have any advice?