Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Seizures with psychic symptoms? Please help!!!!

Fri, 04/13/2007 - 16:21
Hi everyone! I am a 30 y/o woman who has been experiencing "episodes" for 13-14 years. I had two this week, which were severe enough to scare me. I just finally went to see my doc today, who feels they could very well be seizures and is sending me to a neuro for evaluation. She is sending me for an MRI and EEG so that I can go to the neuro with them in hand... These episodes generally happen randomly, but I've noticed that some pop up right when I'm drifting off to sleep. Why I've never thought there is something physically wrong with me until now, is beyond me. They start with a feeling of dread that something bad is going to happen, and I feel this throughout my entire body. Then, I enter a state of what I can only describe as being between dreaming and being awake. I'm conscious, but I feel entranced. It is during this state that I experience intense feelings of deja vu, dread, fear and I feel like I'm having premonitions of the future (I swear, I'm not crazy). Afterwards, my head tingles all over, I feel disoriented and confused, I begin sweating all over and I feel as though someone has stuffed my head full of cotton. At this point, the episode ends, but I'm left with the cotton brain feeling for several hours and I feel as though I've run a marathon and all I want to do is sleep. I used to tell my mom when I was younger that I was experiencing these symptoms and she told me that I was having premonitions. LOL. Maybe that's why I never bothered to talk to a doc about it? However, the episodes I had this past Tuesday and Wednesday were so intense, my husband swore I was having seizures. He ran over to me and said that I looked like I wasn't there, that I was staring off into space and then I had this look of intense fear on my face. He also said that he doesn't know why he didn't think of this before, as he's watched me have dozens of them... Is there anyone here that has experienced a similar thing???? I'm terrified. Thanks so much in advance for you replies! -Kat

Comments

Re: Seizures with psychic symptoms? Please help!!!!

Submitted by leemania on Thu, 2010-03-11 - 10:31
Re: I think I'm having nocturnal seizures...plz help I've been having these night time events since I was in my 20's (and other symptoms during the day. The feeling of leaving my body, tingling, room getting bigger, floor raising up. At night I would have the tingling disorientation (yes deja vu/end of the world feelings with violent nausia (almost vomiting ) and convulsions. I fell totally disoriented, and I can't remember who I am, where I am. Sometimes as I am about to sleep, I like feel like a electrical shock inside my head (and see the flash with my eyes closed), I had a sleep study done and the episodes were witnessed by the study doctors. My Family doctor told me my episodes were most likely from stress and prescribed Klonopin. It has helped, but I still have episodes. I am always tired, and twitch when I sleep.

Re: Seizures with psychic symptoms? Please help!!!!

Submitted by teachergreen on Thu, 2010-03-11 - 17:58

hello,

16 yrs ago this started with me. Doctor said stress put me on valium. Symptoms wouldn't go away and I knew it was more than stress.  It took them awhile to figure out I had epilepesy and had scar tissur in my brain. I take dilantin and lamital and now only have seizures 2-4 month. Sometimes I take ativan to sleep but only occassionly because it is addicting. If I'm going to have a seizure I might know before. A vns is implanted in my chest and with the magnet is has helped. I know the feeling about the twitch.It's annoying. Try a different neurologist maybe. It can't hurt to get another opinion. 

 

This is harder on my family. They worry alot about me. My life has changed but I'm not going to let this condition control my life.  

Good luck

hello,

16 yrs ago this started with me. Doctor said stress put me on valium. Symptoms wouldn't go away and I knew it was more than stress.  It took them awhile to figure out I had epilepesy and had scar tissur in my brain. I take dilantin and lamital and now only have seizures 2-4 month. Sometimes I take ativan to sleep but only occassionly because it is addicting. If I'm going to have a seizure I might know before. A vns is implanted in my chest and with the magnet is has helped. I know the feeling about the twitch.It's annoying. Try a different neurologist maybe. It can't hurt to get another opinion. 

 

This is harder on my family. They worry alot about me. My life has changed but I'm not going to let this condition control my life.  

Good luck

Hi Maryann. Wow... I read

Submitted by happycat2 on Mon, 2007-04-16 - 01:18
Hi Maryann. Wow... I read your post and thought 'Déjà vu ' !!!!!!!! I am sure we have met someplace before .....You are saying what for years I and others have been saying like a mantra! Its always best to make a note of anything that seems 'out of the ordinary' seizure wise. As in ALWAYS... It sure saves time during the visit as you observed. After all being upfront and honest with the neuro during the visit sure helps in the communication progress, and helps the relationship.... What is the point in hiding a change in fluctuating seizure patterns, or what you consider to be something you think the neuro will think is 'freaky?'... Old Timer.... You also raised a really as in really good point there is some really bad research out there written in forums that does more harm than good when reading up on seizures.... Especially when people have trouble sleeping, hormonal changes, or changes in seizure patterns... There was a few years ago anyway in the forums I used to participate in as an ' old timer'.... The prescribed 'cure' then seemed to be watching your ' tea, or coffee' intake... Thankfully those couple of forums have long gone ... Or had last time I looked which was a couple of years ago.... Kat-from one Cat to another ...... Please never feel you are alone. There is always someone who will provide a listening ear. At least in this forum anyway I've found each time I drop by. As solis has said .....No need to be terrified as worry is known to bring on seizures. Until you get checked. ... Do as in DO not drive, don't go without sleep, eat regularly. I agree with that and have some good research material for you.... Also I suggest you read what Lisa has written about her experience of which I am appreciative she has shared with us. One of the first priorities facing the physician when evaluating a patient with epileptic seizures is to determine seizure type and, when possible, epileptic syndrome. This determination is critical because seizure type and epileptic syndrome to a great extent determine the type of evaluation the patient will receive, as well as the type of therapy. Generalized seizures are those in which the first clinical changes indicate that both hemispheres are initially involved. Consciousness usually is impaired during generalized seizures, although some seizures, such as the myoclonic type, may be so brief that impairment of consciousness cannot be assessed. http://professionals.epilepsy.com/page/seizures_classified.html Signs and symptoms depend on the area of the brain in which seizure activity occurs and on the type of seizure. Especially if you are talking Simple Partial Seizures... Symptoms may be motor, sensory, psychic. Can also include altered states of consciousness. Seizures can cause involuntary changes in body movement or function, sensation, awareness, or behavior. A seizure can last from a few seconds to status epilepticus, a continuous seizure that will not stop without intervention. Seizure is often associated with a sudden and involuntary contraction of a group of muscles. However, a seizure can also be as subtle as marching numbness of a part of body, a brief loss of memory, sparkling or flashes, sensing an unpleasant odor, a strange epigastric sensation or a sensation of fear. Therefore seizures are typically classified as motor, sensory, autonomic, emotional or cognitive. In some cases, the full onset of a seizure event is preceded by some of the sensations described above. These sensations can serve as a warning to the sufferer that a full tonic-clonic seizure is about to occur. These "warning sensations" are cumulatively called an aura. http://en.wikipedia.org/wiki/Seizure http://www.ilae-epilepsy.org/Visitors/Centre/ctf/aura_continua.cfm Hang in there, keep us updated. Stay strong positive and upbeat. It helps... Cat. "Many false prophets are gone out into the world." 1 John 4:1

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.