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Seizure Protocol at School

Thu, 03/22/2007 - 15:02
I am just curious about what some of you have in place for seizure protocol at school. My son (freshman in HS) is in an 'active' seizure cycle and we've had to pick him up at school once a week for the last 3 weeks. These have been very small seizures, and he does get a little tired and 'out of it', so it can be pointless for him to even try at school on 'bad days'. It's just getting to a point where we are holding our breath waiting for The Call, and it's causing some 'stress' worrying about leaving work etc. (even though both employers are aware and understanding - it's still time off used) Of course if my son has a significant seizure, there is no question about picking him up. But for these little absence events, or brief seizures where he almost seems to 'shake it off', I don't know if we should be running to pick him up. The staff / aides know about seizure first aid, recognizing my son's particular seizures and they always call me if he has one and then we decide about picking him up. Usually if he has more than one, we go pick him up. What do others have in place?

Comments

Re: Seizure Protocol at School

Submitted by isaiahsmommy on Mon, 2007-03-26 - 18:39
My son is only 6 and his seizures are almost always preceded with vomiting. Our procedure is if he vomits, he comes home. If he complains of a bad headache, he comes home. We have an emergency plan that consists of school staff or nurse giving diastat but, I hope it never comes to that. I know exactly what you mean about "stress" and "getting the call". It has happened a few times this school year...as if kindergarten isn't hard enough!! :) Good luck and take care, Jenna

Re: Seizure Protocol at School

Submitted by Mollysmama on Tue, 2007-03-27 - 12:49
Hi, I have an 11yo daughter in 5th grade. Where we live 5th grade is the start of middle school. My daughter has had four seizures this school year with the first one happening on the very first day of school. She is diagnosed with complex partial (since age 9), but is now evolving - I don't know if it from the medication or what. At last EEG there are signs of increased activity. I have not had a great experience with the school so far. But my number one demand from the school is that in no circumstances is another student be responsible of my daughter while in or after a seizure. I say that because I have found out, that while IN A SEIZURE, the teacher would have another student walk Molly to the office. Each seizure has been a little different, some with vomit, once she stopped breathing (like she just forgot), but in any case another child should never be in that situation. We are in the beginning stages of a 504 plan (see www.wrightslaw.org) as it seems she is now having absence seizures too, along with memory and concentration difficulties. If your son can "shake it off", and is not tired and he wants to stay at school - then he should. Ask him what he wants. Is he embarrassed by what happens? If so then maybe pick him up. Teenagers have so much to deal with and I say give our sweeties every extra bit we can to help them through... Best wishes to you and your son.

Re: Re: Seizure Protocol at School

Submitted by Christine1968 on Thu, 2007-03-29 - 13:47
I agree with Mollysmama. It depends on how your son feels. I have an 11 year old son in fifth grade. Any seizures he has had at school have been partial and he remained conscious during them. Sometimes they can last 5 or 6 minutes and it takes him several minutes before he can speak clearly after the seizure it over. He usually has an aura so he knows it's coming. His teacher walks him down to the office. My husband or I usually go to the school to check on him and make sure he's okay. Most of the time, he just wants to get back to class. But if he doesn't feel right, I'll bring him home. Good luck and take care.

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