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Dreaming and having Seizures

Sun, 12/10/2006 - 15:51
I am not sure where to even post this so I am just going to post this here and hopefully someone can help me with this... OK here it goes.. I have Epilepsy like everyone else here. Mine are Complex partial with Secondary. I am on Topamax 150 2x a day. I am still in the early stages of getting meds right so keep this in mind and not even sure if this med is even the "right" med for me.. But long story short, when I was a kid I had what was formally called "Petite Mal" seizures now called Absence seizures took Phenobarb several years and and lucky enough was OK for more than 25 years without meds. This Oct I had a Grand Mal seizure out of No where, landed in ER with and Abnormal EEG and normal MRI and on Topamax.. OK concerns this week I had 2 vivid dreams that I actually had a seizures in them. I was telling my husband this and now we are wondering if I actually had a seizer in my sleep.. Has anyone else experienced this, or is just my mind playing "tricks" on me or should I have one of those video sleep EEG's?? Side effect of the med?? any in site?? Even though I had Epilepsy when I was a kid, I am all new to it! Please help! Thank you!

Comments

Dreaming does have something

Submitted by shelly maire on Sat, 2006-12-16 - 16:48
Dreaming does have something to say about seizures. I myself have partial complex with secondary generalization. I also had seizures as a child but they were diagnosised only as febrile seizures but they did put me on phenobartitol for a short period of time. I went 15 years without any meds and then had a grand mal one night in my sleep. I don't know if it was my first one or not it just happened to be the first one that my ex-boyfriend had happened to catch. I was out for a total of about 45 minutes from the time that he came to til I came to in the hospital. I suffered vision loss, speech impairments, and some additional fine motor skill problems. I had an abnormal EEG and a normal MRI. So they put me on Dilantin which I was on for about 3 years and then after not having anymore seizures my neuro decided to let me go off it to try and get pregnant. Well I was off my meds for about 2 yrs and then I had another grand mal in my sleep. From there they tried me back on the Dilantin and that didn't work this time around so they changed me to the Topomax and that controled my seizures for about 1 1/2 years. But then my stress level got to high and I was beginning to have break through seizures. So they have been adding meds to the Topomax to try and help control them. I have had the very vivid dreams and when I have woken my husband has told me that I have had a seizure. I have also woken from the dreams very sore and like I never even slept and those are usually good signs that you have had a seizure while you were sleeping. I have never dreamed about seizing though. Some of that may simply be the fear of the newest of the ep in your life. Hope this information helped. If I can be of further help don't hestitate to email me. Shelly

Re: Dreaming does have something

Submitted by kimmarief on Tue, 2006-12-19 - 21:07
Thank you everyone for your replies! I truly appreciate them.. I haven't had these dreams any longer since my dosage was lowered. I am not sure if the dosage was too high for me, but since it was lowered I have been feeling better and not having those dreams. Plus the stress of being Epileptic I am being use to it again. I had the follow up EEG last week and meet with my Neurologist on Friday, so hopefully I find out if the medication is actually working.. *crossing fingers and toes* have a really nice holiday everyone and thank you again for your information, I really do appreciate it, and appreciate all of you! God bless you all!! Complex Partial with Secondary

Re: Dreaming and having Seizures

Submitted by cindym on Wed, 2007-01-03 - 17:07
Hi, I have had seizures in my sleep also. I wake up and can remember having one and sometimes wonder if I dreamt it or really had one, because I get the same sensation I do when I do have one. I think a person can have them while sleeping. I don't have them a lot during my sleep, but did have them before.

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