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Benign Rolandic Epilepsy and chronic bed wetting

Thu, 10/26/2006 - 17:47
My 8 year old son was diagnosed with benign Rolandic epilepsy last year after 2 separate seizures during the early morning hours about a year a part. He recently had another, about nine months after the last one. He is also a chronic bed wetter. We have attributed this to how deep he seems to sleep. It is very difficult to awaken him during the night. We purchased a device that will vibrate when it comes into contact with moisture. Our first attempt at using it coincided with his most recent seizure. We have been fearful to use it since. He is embarrassed by the bed wetting and frustrated that his 5 year old brother has no problems at night. Does anyone else have a similar experience and/or recommendation for addressing this? I really believe the 2 are related. We have 4 sons from ages 2 to 10. He is the only one who has these issues. Apart from these, he seems fine. He is a great student, and has no behavioral problems.

Comments

Re: Benign Rolandic Epilepsy and chronic bed wetting

Submitted by kimberlyntwins on Mon, 2006-12-04 - 18:20
kimberly n twins this past weekend my 9 year old son had a seizure, i took him to the ER and they said sudden onset of seizures and benign rolandic epilepsy they stated that this is a nocturnal type of epilepsy but that day in the ER he had another seizure and then one at 8 45 pm we have yet to see the Neuro Doc but i am confused about this and very scared. also my son is a chronic bedwetter and has never really had a dry night. maybe 10 in all 9 years i have also tried the bed wetting machine to help him at night but it did not work... i searched the web and found this site.. i am just a fearful for my son. and the Dr i saw in the hospital acted like my questions were wasting her time just worried..

Re: Re: Benign Rolandic Epilepsy and chronic bed wetting

Submitted by mama bear on Mon, 2006-12-04 - 22:00
Hi Kimberly, Sorry to hear about your sudden scary experience with your son. If you go to Mama Bear and read my blog you will see that my 2 1/2 year old has just started having clusters of seizures all of the sudden. This has effected his potty training, but I am not worrying about that too much. From what I have read there are some people who loose bladder or bowel control while seizing. Try really hard to stay calm for your little guy while you get all the testing done. Keep reading the Community Forums and parent sites on this web site so that you can hear about what others are going through so everything does not seem so scary and foreign. I wish that I could tell you that everything will be over quick. But now we are on week three and it is not QUITE as scary as the beginning. Please email people as much as possible, in the beginning it was through emailing with a couple of other mommies that I was able to allow myself to cry and still be strong for my family. What type of seizures is he having? Are you waiting right now for the EEG? keep me posted on how he does. I really wish you the best of luck, Mamma bear (Tresa)

Re: Re: Benign Rolandic Epilepsy and chronic bed wetting

Submitted by ekoorb on Mon, 2006-12-04 - 22:13
If the doctors are diagnosing your son with Benign Rolandic Childhood Epilepsy, you should remain hopeful because according to our neurologist most of the children outgrow this. While it is true most of the seizures occur at night (at least 2/3) that does not mean with BRE that a child can never have one during the day. You should try to get into a epilepsy specialist as soon as possible. My daugther was diagnosed with Benign Occipital Childhood Epilepsy which is similiar to BRE in that it has a good prognosis and similiar in some of the ways its manifests. Does your son's seizures involve vomitting? Does he stare off for some time when he has it or does some something else occur? Did the doc put him on meds? Don't let the hospital doctor make you feel like the questions are not important. They are very important and you need to find a caring doc.

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