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Myoclonic Seizures
Fri, 11/03/2006 - 13:07Hi,
I have been trying to learn more about the myoclonic seizures that I have been having. It took me a while to figure out what they were, especially since my doctor is always trying to tell me that they aren't necessarily seizures. But here is the thing: they started when I started getting seizures (about 6 months ago) and they lessen or worsen in direct correlation with my seizure symptoms. It started out as a muscle twitch/jerk in my leg when I was resting in the evenings, and I would occasionaly get them in my face when I was trying to go to sleep. And the more tired I am, the worse, more frequent they are. However, I started taking a supplement recently that had caffeine and ginseng (which I have now learned can be triggers) and the twitch/jerks have gotten much more frequent and pronounced. I get them all the time now, but mostly in my face. Isn't that weird? Will they just continue to migrate around my body? Obviously I stop taking the supplement but the whole experience has been enlightening. Does anyone else have similar symptoms, or experience myoclonic seizures? I am curious to know what other people's experiences with them have been.
Comments
Re: Re: Re: Myoclonic Seizures
Submitted by poodlelover on Tue, 2006-11-21 - 18:45
Hey Heather
According to my PharmD caffeine is a big "no-no"...especially coffee and soda pop! I take 4 meds to control gm seizures and watch my caffeine intake besides. If you even THINK something is acting as a trigger I recommend cutting it out if you can for a while to see if it helps, I've learned the hard way but am finally learning! Good luck!
Poodlelover
Myocolonus
Submitted by Traci_5a76396415dff on Sat, 2018-02-03 - 17:44
I am going to do talk-to-text this is what I have learned I have myoclonus and I've had it since as far as I can remember my little boy that's 9 he's had it as far as I can remember but my daughter who is 17 and my 14 year old son both developed during puberty I have five children and two and three out of my five children have myoclonic jerk it is a form of epilepsy but some doctors won't recognize it as such I have found with me and all of my children that Tegretol and its generic form carbon needs to pin is what works for us also the ones that have myoclonic jerks also had febrile seizures as infants along with myself and I have noticed because I have multiple my mother a couple of aunts and uncles with it also and in my family at least we have found out that caffeine alcohol being tired anxiety ovulation and. Have a big effect on at least the females one with myoclonic jerk scones anxiety like I'm afraid of heights because I'm afraid I'm going to fall because of the monocle on it jerks also I'm afraid to walk across the street busy highway sometimes cuz I'm afraid that I may just have one and get hit by a car I don't know if this helps any of y'all but hopefully it did
Re: Myoclonic Seizures
Submitted by zombo09 on Sun, 2009-04-05 - 01:05
It has been a while, any updates on your condition Heather?
