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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54
I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by cristyquire27 on Thu, 2006-11-09 - 19:24
Try Dr. Vinary Puri he is a wonderful dr we had the same problem untill we found him he is the professor of neurology and pediactrics director divison of child neurology at university of louisville ky and director of child neurology kosair childrens hospital 502- 589-8233 is the number when he started seeing my son he was having three hundred seizures a day now he has been seizure free for a year and a half

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by zowwie438 on Mon, 2009-05-18 - 11:05

I would have to 2nd Cristy's recommendation.   However the phone number has changed to 502-589-8033.

 

When we arrived on site there was another family there that drove 5 hours to see Dr. Puri and we ourselves drove 2.5 hours after our experiences with Childrens Hospital of Cincinnati.    It turned out that Cincinnati Children's is doing cost cutting work visa employees.   You know, the ones that have no clue what they are doing and can hardly speak english. :(

 

Dr. Puri is a very nice fellow, very skilled at what he does from my impressions so far.    Testing facilities at Kosair Children's and UofL is not much better than Cincy Children's.... But at least they can speak the language.    YOU WILL get the feeling that you are lost in the shuffle... But you just have to stand up for your care and control your costs.

 

Most pediatric docs we have seen are nothing more than what I call "milkers"... Where they just feed on your wallet.   The age ole'... Lets try this medication and come back and see me in 4 weeks.   If you have a child with Epilepsy... you know the drill.     I did not get that impression with Dr. Puri, he seems very driven, very purposeful and he has a goal to ride your child of seizures.... period.

 

In closing I would recommend Dr. Puri without reservation.

 

Todd - Cincinnati, Ohio

 

 

I would have to 2nd Cristy's recommendation.   However the phone number has changed to 502-589-8033.

 

When we arrived on site there was another family there that drove 5 hours to see Dr. Puri and we ourselves drove 2.5 hours after our experiences with Childrens Hospital of Cincinnati.    It turned out that Cincinnati Children's is doing cost cutting work visa employees.   You know, the ones that have no clue what they are doing and can hardly speak english. :(

 

Dr. Puri is a very nice fellow, very skilled at what he does from my impressions so far.    Testing facilities at Kosair Children's and UofL is not much better than Cincy Children's.... But at least they can speak the language.    YOU WILL get the feeling that you are lost in the shuffle... But you just have to stand up for your care and control your costs.

 

Most pediatric docs we have seen are nothing more than what I call "milkers"... Where they just feed on your wallet.   The age ole'... Lets try this medication and come back and see me in 4 weeks.   If you have a child with Epilepsy... you know the drill.     I did not get that impression with Dr. Puri, he seems very driven, very purposeful and he has a goal to ride your child of seizures.... period.

 

In closing I would recommend Dr. Puri without reservation.

 

Todd - Cincinnati, Ohio

 

 

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by cristyquire27 on Thu, 2006-11-09 - 19:24
Try Dr. Vinary Puri he is a wonderful dr we had the same problem untill we found him he is the professor of neurology and pediactrics director divison of child neurology at university of louisville ky and director of child neurology kosair childrens hospital 502- 589-8233 is the number when he started seeing my son he was having three hundred seizures a day now he has been seizure free for a year and a half

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