Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

One seizure was enough

Mon, 07/03/2006 - 21:27
Hi, All, I'm new here--stopped by the site looking for info after having my first (and so far, knock on wood, only) seizure two weeks ago. I'm 28. It scared the daylights out of me and my family. My EEG and MRI were clear. Doctor said right now the best thing to do is try to stay healthy and wait and see what happens next--that if something's wrong, I'll have another. Could be just a fluke or a blood sugar thing, etc. I'm sure you folks know the possibilities better than I. I would like to perhaps get a second opinion (did not love neurologist #1) and keep gathering information. Anybody else had just one? Or have any advice for me in this uncertain time?? Thanks for providing this place for support and info, y'all...I appreciate it. --w.e.

Comments

Re: One seizure

Submitted by Amyamy on Thu, 2012-04-12 - 10:24

Hi,  I am curious how your daughters surgery went and if has help relieive her symptoms?  Our son has been very ill with seizures and gets strep often.  The only treatment we have found to help is IVIG.  He has been through all of the AEDs and they just seem to make things worse.  We are considering having his tonsils removed, but we are not sure it is worth the risks considering his seizure threshold is very low.

 

Amy

Hi,  I am curious how your daughters surgery went and if has help relieive her symptoms?  Our son has been very ill with seizures and gets strep often.  The only treatment we have found to help is IVIG.  He has been through all of the AEDs and they just seem to make things worse.  We are considering having his tonsils removed, but we are not sure it is worth the risks considering his seizure threshold is very low.

 

Amy

Hi Rhonda, There are MANY

Submitted by solis on Thu, 2006-11-02 - 23:24
Hi Rhonda, There are MANY people who, for various reasons, have one seizure in their lives = why epilepsy is generally NOT concluded until more than one seizure has occurred. "About half of the people who have one seizure without a clear cause will have another one, usually within 6 months. You are twice as likely to have another seizure if you have a known brain injury or other type of brain abnormality. If you do have two seizures, there's about an 80% chance that you'll have more. If your first seizure occurred at the time of an injury or infection in the brain, you are more likely to develop epilepsy than if you had not had a seizure in that situation." http://www.epilepsy.com/101/ep101_seizure.html Best wishes, of no more seizures, to you & we, ~sol

Re: Re: One seizure was enough

Submitted by emily7777 on Fri, 2006-11-03 - 00:02
Dear Rhonda, I went to the doctor on Sunday with an infected sty in my eye. The doctor prescribed antibiotics. On Thursday night I had whats considered a tonic seizure, I lost consciencness and my body seized up but I did not have convulsions. It was the scariest thing that has ever happened to me. After 3 weeks I finally got into the neuro and they put me on lamictal, which made me deathly ill. After only being on it for 3 days I stopped taking it. I decided I would rather wait to have the eeg and get the results before I started taking aeds. About 2 weeks later I took the eeg and got my results 2 weeks later. Which showed brain spikes???? My neuro said she would put me new aeds (which she said I should have been taking all along--and was scolded for taking myself off of them) for 1 year. She would do a new eeg and if it came out normal I can stop taking the aeds. It was a year on Oct. 26th, but due to my insurance change, I have to go to my primary physician and get a referral for a new neuro. It's going to take some time for all that. Just to let you know I never had another seizure since then, even when I wasn't on the aeds. Lots of horrible side effects. Especially the weight gain!! By the way I am on Tegretol-CR. The dose I'm on is very low 400 mg per day. Especially for my new size, but still no seizures. Maybe it was my one and only seizure, I've read if you don't have another seizure within 3 months of the 1st one, It's a good sign. Hope everything works out for you. Emily

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.