Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Does ANYONE like being on Keppra?

Thu, 09/14/2006 - 16:02
Okay, so I know no one really likes being on any medication, but I am just wondering, does anyone LIKE Keppra? I hate Keppra. I hate the way it makes me feel. I'm always tired and grouchy and fidgety. I can't see straight most of the time and my already short-fuse is way way shorter. Has anyone been on Keppra and NOT had bad side effects? Because for the number of people, it seems like most people I've talked to DON'T like it.

Comments

Another comment on the side

Submitted by Michtom on Sat, 2006-09-23 - 17:31
Another comment on the side of Keppra. My daughter who is 11 takes 2500mg a day of Keppra and 700mg a day of tegratol. Only now on this higher dose are the seizures coming under control with them occurring less frequently and less severe (she has partial complex, often moving to tonic clonic) This is a high dose of keppra for her age and size, but she was moved up very gradually.Every time the dose went up for a week or so she felt tired and 'off', but now is used to it and while still tired it is manageable if we make sure she does actually get enough sleep. I think different medications work for different people - she felt appalling on Epilem, with bad headaches and just drained of all energy and enthusiasm. We still need to watch her carefully given the high dose of keppra she is on, we know that she may not be able to stay on it, but it is so nice even just to have a short repreive from the seizures.

Re: Another comment on the side

Submitted by Smokeybear on Sat, 2006-09-23 - 23:23
I have been on Keppra for two years. At first I was exausted then after a few weeks I felt better more awake and the pill has worked well for me. I have tried most of them and I have to say that I was on topamax and that from the start was not good drug choice for me, I felt like its hard to explain not sharp it made my hard drive really slow if that makes sense also crabby and moody. I had my doctor take me off of that and I feeel a lot better. wish everyone well. T.

Re: Does ANYONE like being on Keppra?

Submitted by fzMousie on Sun, 2006-09-24 - 07:11
I should update and say that I'm off the keppra now and on dilantin (phenytoin sodium). Physically, the seizures have let up. I'm not sure if they've gone compltely. I'm mentally slow and I've developed an on and off tremor in my heands, but the actual seizures have slowed down considerably. My doctor did not put me on phenytoin for a long time, just long enough to slow down the activity. So...we'll see. :)

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.