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Caffeine a No-No?
Fri, 07/21/2006 - 14:57The more I ask folks with "E" about their reactions to caffeine (in far more foods than coffee and tea), the more I realize I'm not alone. For as great as a cup of that brown stuff tastes, it sure can screw up my neuro system. Indeed, in most cases when I have a seizure or get "auras" -- I've had coffee, or an extensive amount of it. Oh, maybe that wake-me-up cup in the morning isn't that bad, but those pleasure-filled cups can become addictive, can't they? Let's hear how you and Starbucks get along!
--George
Comments
Re: Caffeine a No-No?
Submitted by susieq on Thu, 2006-09-21 - 11:32
I too, like many others, have the addition - (mine, for you snobs is Kona) I drink somewhere in the range of 5 pots a day, is my normal drink in a restaurant, and does not seem to relate to seizures. I started drinking it when I was put on Pheno to offset the drowsiness and stay awake in class. Headed for surgery, no one has suggested that I go off, and don't plan to, since that would cause caffenine withdrawala headaches in addition to surgery headaches. Starbucks & I are a weekly thing.
Re: Re: Caffeine a No-No?
Submitted by missemmy on Fri, 2006-09-22 - 18:24
Caffeine makes me tired. There is no morning pick me up in a cup of coffee for me. I guess I'm just weird like that. I have to avoid caffeine if I want to stay alert.
Emily
I drank strong coffee for
Submitted by solis on Wed, 2006-09-20 - 17:45
I drank strong coffee for decades and liked mine reallllly strong. However; as we're on depressants due to E, and since caffine is a stimulant and thus makes one wide awake, our love of the drink makes perfect sense. It mutes the 'easily exhausted' feeling one often gets from a strong dose on some AEDs. However caffine also adds to the risk for osteoporosis (something many on AEDs are already at risk for, due to the meds) I still drink strong coffee, but mine is now decaffinated. (I already have osteoporosis so I'm adamant I will keep this from blossoming.)