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Living Alone With Epilepsy

Wed, 09/13/2006 - 15:38
Hi everyone, I live a busy professional life as a consultant and live alone. I've been having grand-mal seizures for 2 years now (about 5-6 episodes). Living alone introduces some complications which I would like to bring up. 1. Sometimes it is extremely difficult for me to figure out whether or not I've had a seizure. This especially happens if I have been unwell, if I had more than 4 beers the night before, or if I am very tired with work. Often, some scattered stuff and a pounding headache is the only sign. At other times, some weird bruises are the only clues. 2. I also find it difficult to judge whether or not I suffer from absence seizures (staring episodes). If there was someone to see me, I could find out. Any alternative suggestions to investigate? 3. I have come to recognize the aura I tend to have. It starts with a feeling that "everything i've done is useless... pointless...". I usually lie down in bed, but have learnt the hard way that too much sleep is a sure trigger for a seizure in my case. Does it work for other like this? What do you all find useful in preventing a seizure if an aura is experienced? 4. Does anyone experience an increase in fidgety behavior for a few days following a serizure? I find myself shaking my legs, jerking my arms.... or a flickering feeling in eyelashes. I am keen to corroborate my theory that this is linked to a seizure because if so, I can use it as a sign to take it easy till these symptoms reduce (implying return to normal state of affairs in my head) Whew! thats a lots of questions. Please feel free to contact me for more information. I like to lve life to the fullest and am not going to let a disease like this stop me. Others interested in the same goal should connect! G

Comments

Re: Re: Living Alone With Epilepsy

Submitted by epl_controller on Thu, 2006-09-14 - 14:00
thanks for the comments people. i take Sodium Divalproex (1000mg once daily)... its apparently quite a strong dosage... and i want to get it reduced as soon as pessible! the scariest ting is if i have to take this medication for ever... ouch. very ouch. thats for the tip on breathing/taking care when an aura is felt. i'll try some soothing music next time. one more question: is conciousness lost in a staring episode/partial seizure? i suspect i'm having partials, but usually i remember what i was thinking immediately afterwards... g

Re: Re: Re: Living Alone With Epilepsy

Submitted by angel_lts on Thu, 2006-09-14 - 14:35
No you dont loose conciousness for a complex partial seizures. Well I hope the breathing works for you. For it works for my complex partial seizures. It is called the diaphragmatic breathing. Breathing Technique to help Seizures http://www.epilepsyhealth.com/deep-breathing.html Diaphragmatic Breathing http://www.swamij.com/diaphragmatic-breathing.htm I have also stopped some of the seizures from trying to pretend it is not happening. Or just keeping my mind occupied with something else can stop some. Once I was going to have a grand mal seizure. My hand began to shake badly. (actually later I found out I was low on my sodium)Then I know I am going to have it. I had my laptop on my lap and sitting in a chair with my feet up. I was so worried that my laptop would drop during the seizure, that I was trying to get the computer next to me on my table without getting up. I did place the computer there and the seizure stopped. So you see controlling is a big issue. Not many people believe it it. Look into neurofeedback I have done that too. Very interesting. I will be going back to it in the future. What is Neurofeedback http://www.whatiseeg.com/ Neurofeedback Info and Physicians http://www.eeginfo.com Take care Lisa Http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Re: Re: Living Alone With Epilepsy

Submitted by epl_controller on Thu, 2006-09-14 - 16:09
these are excellent suggestions. i'll have a closer look at these web links. a month ago (my last full-seizure), i got an aura while showering. i slept off immediately and continued sleeping for 5-6 hours. on waking up, i could literally 'feel' that my seizure threshold was terribly low. pretty soon, bingo! i will focus much more on controlling myself after petit-mal episodes in future.

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