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Name the BEST pediatric epilepsy dr/hospital - we will go ANYWHERE!

Thu, 09/07/2006 - 19:54

Topic: Living With Epilepsy - Youth

I am searching the world for the best pediatric epilepsy doctor or hospital for my 10 yr old son. We have been to MN, OH, and 3 different hospitals in Chicago,IL. All of them take on my son's case & then ignore us when things dont get any better. They talk of surgery, but dont set up the necessary tests - I call them repeatedly since hes not doing better, hes worse - they increase his medicine, it does nothing, they do nothing. They rarely return my calls - in the meantime, my son suffers, his schooling suffers, his social life suffers. PLEASE - can anyone recommend the best dr out there for him? I will go ANYWHERE - plane, train, automobile - my son has right frontal lobe intractable epilepsy with complex partial seizures. he also suffers from post-ictal psychosis on a regular basis. Thank you for your help.

Comments

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by ekoorb on Thu, 2006-09-07 - 22:17

You said you went to Chicago. Did you go to an epilepsy specialist at Children's in Chicago. We have the most fantastic doctor. We are so happy with him. Our first doctor was a general neurologist and such an --shole. Please contact me if you want to know who our doctor is. We can buddy list each other and then IM each other. It takes a while to get into Children's but if you get the right doctor, it can change your life.

Re: Name the BEST pediatric epilepsy dr/hospital - we will go AN

Submitted by wyboemail on Mon, 2009-05-18 - 13:14

Hi, who did you see in Chicago? We have seen one doctor there. curtis.wybourn@us.qbe.com

Curt

Hi, who did you see in Chicago? We have seen one doctor there. curtis.wybourn@us.qbe.com

Curt

Re: Re: Name the BEST pediatric epilepsy dr/hospital - we will g

Submitted by spiz on Thu, 2006-09-07 - 23:55

Shannon, Do you take him to a neurologist or an epileptologist? Here's a link I found that may help you in your search: http://www.naec-epilepsy.org/ Hope this helps! -Spiz

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