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Do seizures cause pain?

Thu, 06/08/2006 - 17:29
Hi I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.

Comments

Re: Re: Re: Hi all. Following in on the

Submitted by angel_lts on Sun, 2006-06-25 - 05:33
Happy Cat That is so true! And I have experienced so many things that are noon the internet, in the books.... My doctor always laugh now, for she know, if it happens to me, it can happen to anyway. ANd that has happened many times to me! My doctor is now very OPEN MINDED! If she wasnt, I sure would be in trouble! take care lisa http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Re: Re: Re: Hi all. Following in on the

Submitted by happycat2 on Wed, 2006-06-28 - 12:07
Hi Angel. My husband Larry and I took Mom to have an echo of her heart and to see the heart doctor.  She got a good report not great but good.  Very good. He heard me out. Then we took her to eat and then on to her regular doctor to have her blood work done and while there I asked a favor of them.  I asked them if they could fit Mom in for him to take a peek at the foot which was swollen some and really bruised.   She told me she had some problems with her motorized chair and that she lost control of it and ran into the front of the sofa, hurting her foot.  I was convinced she had broken it.  Anyway, he looked at it and sent her for an x-ray and then back to his office.  And just as I had thought.  She had broken it in two places.  There was not much that could be done except to put on a boot cast or wear a good fitting shoe.  Anyway, mind I am not blaming her but mind you no bones got broken when I was taking care of Mom.  I do blame Mom for not letting them take her to the ER when she saw her regular doctor. She is a stubborn one.  And if they had called me, I would have went down (with a driver) a told her she was going.  She needs that stability.  I talked with Mom's neighbor this evening and she told me that Mom acted more like herself tonight than she has in weeks.  I was glad to hear that.  I tried to call her twice but did not get an answer so I called her neighbor who said that Mom had told her that she was going to bed.  So she must have been asleep.  I will try again tomorrow.  My niece in North Carolina says that LeRoy my nephew called her today. Leroy thought that I had not been to see my doctor as much as I should, nor had I called since I had left there.  I had, and with an open mind when I did. So I was happy to correct that and tell him that fact. As I was I had spoken to Mom everyday and that Larry and I had spent the day with her taking her to the doctors.  So that made me feel good to know that got straightened out, and the doctor listened to my request with an open mind also.    Right now I''m very tired from that long day and trying to help out my nephew (the one taking cancer treatments) by letting his two children spend the night tonight and the day tomorrow with my kids.  They are sweet kids but very much a handful.  Still it is all that I can do to help out right now, but with an open mind. Hang in there, and take care. Cat. "Many false prophets are gone out into the world." 1 John 4:1

Re: Re: Re: Re: Re: Hi all. Following in on the

Submitted by angel_lts on Thu, 2006-06-29 - 09:34
Cat Glad your mom is doing well. And yes kids can be a handful. SO you better get your rest and make sure you take care of yourself too. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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