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Do seizures cause pain?

Thu, 06/08/2006 - 17:29
Hi I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.

Comments

Re: Re: Hi Lisa, You aren't

Submitted by angel_lts on Fri, 2006-06-16 - 18:13
Spiz, Is that happening before a seizure? Do you think it like an aura? My daughter has tics. Is it like a muscle tic in your abdominal area? For then after the fact, is it still painful? For a muscle tic would do that. I know my daughter had those tics and painful as hell when she was younger. Oh that sounds terrible. Well glad we could be helpful to you take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach

Re: Re: Re: Hi Lisa, You aren't

Submitted by spiz on Fri, 2006-06-16 - 19:20
Lisa, It's not an aura or a tic, believe me. It is an abdominable seizure, which by the way are very hard to determine as being one. I was sent to every specialist in all fields covering all the way up to my liver to rule out it being anything else. Only then was the neuro-surgeon comfortable with determining it as an abdominable seizure. The pain stops as soon as the seizure stops. I don't feel any pain afterwards but am really stressed when it happens that it will happen again. The seizure seldom hits once when I have them. It's like having the severe myoclonics, move a muscle and wham! I try to be very still for at least five minutes afterward one. And then it can still happen. The pain during one is unbelievable. The first I read of them as being rare was on this thread. My neuro never mentioned that. My feelings on them is that they are often misdiagnosed as being something else especially being there isn't alot known or understood about them. Also, the symptoms are so close to other types of disorders. My understanding is they are hard to diagnose and with my experience with doctors...I'm perfectly willing to believe it is still a guessing game until they devise a test that can accurately say it is definitely a type of seizure or I can will one to happen on cue at the right time. Until then...it's an abdominal seizure. I'm back to not liking my brain. -Spiz

Re: Hi Lisa, You aren't

Submitted by angel_lts on Fri, 2006-06-16 - 18:05
Sol You have to bring the problem up to your doctor. I always found a different doctor, if I felt they were not helping me or could not find answers. You need to find out what the problem is no matter how the much the doctor believes different. FOr not all the doctors will believe in vitamins/omega, Neurofeedback.... We have to do what you believe is right for you. take care Lisa http://health.groups.yahoo.com/group/epilepsyapproach/

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