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Do seizures cause pain?
Thu, 06/08/2006 - 17:29Topic: Parents & Caregivers
Hi
I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.
Comments
Re: Do seizures cause pain?
Submitted by angel_lts on Wed, 2006-06-14 - 21:14
Yes there are some people who do have pain when seizures occur.
There is someone in my group has said they have pain when having she has a seizure.
take care
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/
Hi Lisa, Here is a page you
Submitted by solis on Thu, 2006-06-15 - 01:04
Hi Lisa,
Here is a page you might want to look at:
http://www.epilepsy.com/101/ep101_symptom.html
You will note that pain is NOT listed as a symptom of a seizure.
It happens post-icatally...if one is hurt during a seizure.
Here is another site..same conclusion
http://www.northshorelij.com/body.cfm?id=5487&plinkID=85
I've had seizures for 49 years and have never had any pain during a seizure. Just because a person 'thinks' epilepsy causes them pain does not make the concept literally valid.
~sol
Hi.. As one who has had
Submitted by solis on Wed, 2006-06-14 - 13:29
Hi.. As one who has had seizures since I was younger than your son (and my boys are now 2O & 23 years old) I can promise you that the seizures are NOT painful. Sadly, some feel physical pain after seizures (if they had bitten their tongue, for example) .. but during the seizure itself there is NO pain. I had neurosurgery 5 months ago and the surgeon made the comment that my brain didn't need anesthetic as the brain does not directly feel pain..it registers pain from other parts of the body. I found this online.. "A tonic-clonic seizure may appear dramatic and frightening to an observer. It is important to remember that the person affected normally feels no pain during the seizure, and they will probably have no memory of it afterwards." sourc: http://www.epilepsywestlothian.co.uk/factsheets/first_aid_for_seizures.htm hope that helps ~sol