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Trying to get off Dilantin
Thu, 01/26/2006 - 11:28Topic: Medication Issues
I'm trying to replace Dilantin with some other med that will have less side effects. The doctor tried Lamictal and it didn't work. Then I found out it wasn't really indicated for grand mal seizures. !#%!! Now my doctor wants to try Depakote. Can anyone give me some insight on changing drugs? Should I just stick with Dilantin because all these drugs have side effects that are just as bad?
Thanks
Comments
I`ve been on Dilantin for
Submitted by mkfarnam on Wed, 2006-02-15 - 18:52
I`ve been on Dilantin for over 35 years along with Phenobarbital and Mysoline. I am now on Dilantin alone and my seizures (violent Grand Mal) have been controlled for 15 years. The only "noticeable" side effect I have to deal with from Dilantin is "lack of sex drive".
Has anyone else had or still has this side effect?
Mike
Re: Trying to get off Dilantin
Submitted by snabailey on Tue, 2006-03-14 - 15:59
Get off of it as soon as you can and then have your thyroid checked. Dilantin put a cyst on my thyroid and I had to have it checked for cancer. I Never would have found it but I had a seisure in the car and banged my throat and they hadt o check to see if I crushed my larnyx. When I asked my doctor why he didn't tell me Dilatin caused cancerous cyst he said," There isn't any point in telling you because you were off the medication, was it malignant?" I have to go back every year and have it checked. I quote him!
Re: Re: Trying to get off Dilantin
Submitted by mkfarnam on Wed, 2006-02-15 - 18:52
I`ve been on Dilantin for over 35 years along with Phenobarbital and Mysoline. I am now on Dilantin alone and my seizures (violent Grand Mal) have been controlled for 15 years. The only "noticeable" side effect I have deal with from Dilantin is "lack of sex drive". Has anyone else had or still has this side effect? Mike