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Pseudo Seizures

Fri, 01/20/2006 - 13:47
Hi there, Im hoping someone out there can help me out. I have just returned from the A & E Department of my local Hospital after being sent their by my GP due to my having 2-3 seizures a day and having a real bad headache down the left side of my head and weakness on my right side. After being treated as what can only be described as a slab of meat I was told that I was having pseudo seizures to cover up my stress that I was under and that the medication I was on was enough to knock out a horse and that I was using these seizures to get out of situations. I did try to assure the Doctor that I am not stressed and am just a normal 35 year old mother of two wonderful kids, who is happily married and works full time but all he said was that he was trying to give me the chance to "admit" that I knew I was doing this in order for him to help me further. When I assured him that I dont remember going into seizure and that this had been the case for 12 years he then said he couldnt help and that I would have to wait 7-8 weeks for a so called urgent referral. To say I feel totally disheartened and extremely upset would be an understatement and although I am waiting to see my GP on Tuesday and I dont know what to do now. Any advice anyone can give would be really gratefully received. Please help as I want my life back. Star xx

Comments

Re: Re: Pseudo Seizures

Submitted by starburst70 on Mon, 2006-01-23 - 04:19
Hiya Barbie, Many thanks for the reply. I will try and provide as much information as I can. The most upsetting thing about all of this is that NO tests were run whilst I was in the hospital. I was kept in the resus room and bloods were checked but no eeg or mri scan were carried out. I was basically left in a bed with my husband by my side for over 4 hours with an attending/sho asking us the same questions over and over again to see if we gave the same answers and once she could get no further she then got the doctor who said about the pseudo seizures and that I had unresolved issues that were causing them and that although I was saying I did not have any, he then went on to say that they could be that deep in my self concious that I wasnt aware of them myself. On top of that, after telling them that when I was first diagnosed an arachnoid cyst was found the attending/sho said it was just a little cyst (she hasnt seen the scan results from previous as this was different from my usual hospital) although I had been told that if the cyst burst it could cause severe paralysis and if I was extremely unlucky, death due to the fact that it was in the middle layer of the brain and couldnt be operated on as it would prove too risky, I was made to feel like I was making a whole big issue out of it. I am now due to see my usual Doc tomorrow (Tuesday) to discuss all of this with her and to see if my meds can be changed as the ones I am on currently are making me feel too drowsy and I have gained at least 30lb since being on them on top of the fact that they are not controlling my fits/seizures. Any advice would be so appreciated Barbie, or anyone for the matter. (((Hugs))) and and big thank you, Star

Re: Re: Re: Pseudo Seizures

Submitted by txrhb1 on Fri, 2006-01-27 - 01:06
Hi Star, I am so sorry I missed this and did not respond earlier. I am glad you went to your usual doc, and hope you got some answers. My suggestion would be that you see an epileptologist (neuro specializing in epilepsy) to get your seizures treated. I would also suggest that you avoid this particular hospital in the future if at all possible. if not possible, I would see if you can have your doctor(s) write out a treatment plan and have it on hand at the hospital if possible. If you have to go to that hospital again, and are treated this way, have someone contact your doctor(s), and let them know what is going on. They should then be able to contact the ER and straighten things out. You should never be treated this way, for any reason. An arachnoid cyst is not just "a little cyst", it requires monitoring and treatment when problems arise. you might also consider writing a letter the the medical director of the hospital, with doctor's records to back up your diagnosis. Sounds like they have a major problem in their ER department, and it needs to be fixed immediately. ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo

Re: Pseudo Seizures

Submitted by Mary Ann Yenchenko on Thu, 2006-01-26 - 21:49
The worst thing to be without........hope WOW, I think it's time you found yourself another doctor, how can anyone be so heartless? I have been on several different med's all with different side effects, keep going the extra mile, educate yourself and the med's you are on, good luck

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