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Seizure Protocol at school

Sun, 01/08/2006 - 18:26
Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and when and if to call an ambulance? If yes to this, how did you go about getting this plan set up? I have a teen whose SP & CP are becoming more TC as he goes through puberty, and I've requested that Diastat be on hand at school just in case. My son's neurologist wrote up a plan, but the school doctor is refusing to follow it...she wants 911 called for every unresponsive seizure (which could include any of his seizure types) and does not want the Diastat used. I am pushing for the 5 minute rule and the use of Diastat if necessary....she's fighting me all the way, eventhough his neurologist has written the plan! Can the school doc do this? Can she over ride my child's doctor's plan? We live in NY and he goes to a public school. Thank you in advance! Wendy

Comments

Re: Re: Re: Re: Re: Re: Seizure Protocol at school

Submitted by wmott1122 on Thu, 2006-01-19 - 06:28
Sweet Victory.......... Finally the district has decided to comply with the neurologist's orders! They will be allowing the diastat at school! I think the threat of me getting a lawyer finally did them in! Here's to my son, Ryan! Thank you to everyone here for words of support and encouragement! We can make a difference even if we have to fight! Wendy

Re: Re: Re: Re: Re: Re: Re: Seizure Protocol at school

Submitted by txrhb1 on Thu, 2006-01-19 - 12:00
CONGRATULATIONS!! Thanks for continuing the fight, in spite of the opposition. You are an excellent advocate for your son !!! ((( hugs ))), Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo

Re: Seizure Protocol at school

Submitted by littlebug on Tue, 2006-01-24 - 20:12
go to your school district and let them know what is going on also inform them that they are going agianst the health and disablitiy act.ask the doc if he is willing to be medically responsably for your child if not they have to aloud the meds.good luck

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