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right temporal lobectomy

Tue, 02/01/2005 - 09:38
Has anyone in this group had or knows someone who has had a right temporal lobectomy?John

Comments

RE: RE: right temporal lobectomy

Submitted by Barb10 on Fri, 2005-08-19 - 11:08

I'm scheduled for a right temporal lobectomy on Sept 19th at Johns Hopkins Hospital.  I have partial complex seizures under 95% control on 2000mg of Tegretol XR.  I can drive, work, etc.  My goal is that I just want to get off such a high dose of medication.  The MRI showed a scar on the right hippocampus.  Video monitoring unit showed seizures derived from the right temporal region.  My surgeon Dr. Fred Lenz said the right hippocampus and amegdala would be removed during surgery since they reportedly communicate with one another.  I am scared and unsure of what side effects after surgery and for how long.  I heard the left periferal vision could be a problem along with spatial memory. 

Would you share how you felt after surgery? Headaches, jaw soreness(how long until you could eat), and how your head feels day to day where they removed and replaced the skull.  I'm still debating whether I can go through with it given I rarely have seizures.  Thank you in advance for any information you can provide.  Barbara

I'm scheduled for a right temporal lobectomy on Sept 19th at Johns Hopkins Hospital.  I have partial complex seizures under 95% control on 2000mg of Tegretol XR.  I can drive, work, etc.  My goal is that I just want to get off such a high dose of medication.  The MRI showed a scar on the right hippocampus.  Video monitoring unit showed seizures derived from the right temporal region.  My surgeon Dr. Fred Lenz said the right hippocampus and amegdala would be removed during surgery since they reportedly communicate with one another.  I am scared and unsure of what side effects after surgery and for how long.  I heard the left periferal vision could be a problem along with spatial memory. 

Would you share how you felt after surgery? Headaches, jaw soreness(how long until you could eat), and how your head feels day to day where they removed and replaced the skull.  I'm still debating whether I can go through with it given I rarely have seizures.  Thank you in advance for any information you can provide.  Barbara

Re: RE: RE: right temporal lobectomy

Submitted by Jennifer F Myers on Wed, 2006-01-18 - 19:22
Barb, I just located this website & after reading your note from Sept. I was wondering if you had your surgery & how are you doing? I have been undergoing tests for the pasts few days, to see if I am a candidate for a temporal lobectomy. I had some tests done at Johns Hopkins a few yrs ago but we relocated to FL, so I did not have surgery at that time. Let me know how you are doing & any recommnedations you may have. God Bless, Jennifer

Re: RE: right temporal lobectomy

Submitted by MiniMon on Mon, 2005-11-14 - 14:34
Are you currently medicated?

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