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Seizure Protocol at school

Sun, 01/08/2006 - 18:26
Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and when and if to call an ambulance? If yes to this, how did you go about getting this plan set up? I have a teen whose SP & CP are becoming more TC as he goes through puberty, and I've requested that Diastat be on hand at school just in case. My son's neurologist wrote up a plan, but the school doctor is refusing to follow it...she wants 911 called for every unresponsive seizure (which could include any of his seizure types) and does not want the Diastat used. I am pushing for the 5 minute rule and the use of Diastat if necessary....she's fighting me all the way, eventhough his neurologist has written the plan! Can the school doc do this? Can she over ride my child's doctor's plan? We live in NY and he goes to a public school. Thank you in advance! Wendy

Comments

Re: Re: Re: Seizure Protocol at school

Submitted by wmott1122 on Sat, 2006-01-14 - 16:57
Hello everyone, The letter from the State Ed Dept. was not a huge victory for us.....the superintendent does not feel that State Ed has a right to tell him how to run his district, so he is not going to agree to the use of Diastat. Sooooooooooo, the Epilepsy Foundation has provided me with a lawyer, who will start out acting as just an advocate, but will take the role of my lawyer if need be. The principal, psychologist, nurse, and my son's teacher are all very frustrated and upset with the district administration. As a matter of fact, the principal apologized to me several times yesterday and said he was embarrassed to be a part of the whole thing! He also said (off the record) that it's just an ego/attitude thing going on with the superintendent. I've forwarded all kinds of info to the lawyer, so we will see what happens next. Thank you all for your kind words, suggestions, and support! I'll keep you posted on my progress! Wendy

Re: Re: Re: Re: Seizure Protocol at school

Submitted by txrhb1 on Sat, 2006-01-14 - 19:43
Hi Wendy - It is absolutely unbelievable to me that this ego-inflated superintendent is being so deplorable with your situation. I commend you for following through, and I am so sorry you are going through this. I am so glad the Epilepsy Foundation is working with you - hooray for them and their willingness to advocate for your son. If there is anything I can do to help, please let me know. Good luck, and best wishes, Barbie *************************************** "We are each of us angels with only one wing, and we can fly only by embracing each other." -lucian de crescenzo

Re: Re: Re: Re: Re: Seizure Protocol at school

Submitted by dmom3005 on Sat, 2006-01-14 - 20:24
I'm glad the efa is helping you with this, keep us informed as to how this goes. It shouldn't be a issue at all. Donna

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