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Seizure Protocol at school
Sun, 01/08/2006 - 18:26Topic: Parents & Caregivers
Does anyone here have a teen who has tonic clonic seizures and therefore requires Diastat at school? If so, do you have a seizure protocol/plan of action on when and how to use it at school, and when and if to call an ambulance? If yes to this, how did you go about getting this plan set up? I have a teen whose SP & CP are becoming more TC as he goes through puberty, and I've requested that Diastat be on hand at school just in case. My son's neurologist wrote up a plan, but the school doctor is refusing to follow it...she wants 911 called for every unresponsive seizure (which could include any of his seizure types) and does not want the Diastat used. I am pushing for the 5 minute rule and the use of Diastat if necessary....she's fighting me all the way, eventhough his neurologist has written the plan! Can the school doc do this? Can she over ride my child's doctor's plan? We live in NY and he goes to a public school. Thank you in advance!
Wendy
Comments
Re: Seizure Protocol at school
Submitted by mom2tnt on Sat, 2006-01-14 - 08:05
i have a 3min plan if my son has a 3 min sz ( has just had abance sz. ) or a full grand mal they call 911 then me they have the diastat at school . but or ems has it too .
Re: Re: Seizure Protocol at school
Submitted by mom2tnt on Sat, 2006-01-14 - 08:08
forgot to add that the epilspsy foundation in your city will come in your school and teach the school on how to give diastsat and help train the staff in what type of sz your child has
Re: Seizure Protocol at school
Submitted by dmom3005 on Fri, 2006-01-13 - 22:48
You might want to contact the folks that make diastat, I believe they are working with a organization to get the nurses trained and all schools in place to use diastat in all states. SO you might contact them as to how to get help with this. Donna