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Awake During Seizures

Thu, 01/05/2006 - 22:20
Has anyone ever remained awake throughout an entire seizure...I started doing this while I was pregnant with my first child. My neuro says that it may be psycological because it started right after he told me how much harm a seizure will do to an unborn baby. One of the things he stressed was that when you pass out, you stop breathing momentarily. Normally this wouldn't hurt the person having the seizure unless it was prolonged but it can do real damage to the baby for even the shortest time. Since then, I have never lost conciousness. I can't decide if that is good or bad cause it intensifies the fear and suffering. Anyone else had this happn??

Comments

First, congrats on being

Submitted by solis on Fri, 2006-01-06 - 01:21
First, congrats on being preggers! No losss of consciousness is a common feature of simple partial seizures. I noted you were going to a neuro... they are like GPs of the brain. And being unconscious (as when asleep or in a seizure) does not always harm a baby. Please, do yourself a favor and get an epileptologist. I've has simple and complex partials for years ... at least with simple partials you know they happened. Amnesia is a feature of complex partials so they can occur and I'll be oblivious to that fact. ~sol

Re: Awake During Seizures

Submitted by zoe49576 on Fri, 2006-01-06 - 22:40
I have Seizures that I remain Completely awake throughout. I am awake.. I can tell you that the seizure is coming. But then I stare off into Space a little. I grab people hands. I am not able to make out words, I try to speak but it comes out all jumbled up. The Dr. can't figure out what these episodes are. I passed the tests.. nothing showed up. The thing is, is that they come around the time of my period. Since I started the Topomax though they have lessened in frequencey.

Awake

Submitted by Mariah0105 on Fri, 2008-01-18 - 13:15
I found your comment interesting.  I too am on Topamax among a few other seizure meds. Recently after 40 years od nothing but Grand Mal/ Tonic Clonic seizures, I am beginning to have a change in my seizures where I too am awake.  I never used to have an Aura, now I do, however I am not able to talk or tell anyone what is going on no matter how hard I try or want to, the words just will not come out.  I get very anxious. I shuffle papers if in hand. Touch my face etc. Or push people away if they try to help. But what really caught my attention was the fact that you said your seizures seem to occur around the time of your period. Mine usually occur a day or two prior. I have told all of my epileptologist this and they just dismiss this. This has happend for years. There has to be something to this.

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